1) Bob Jackson*-1936-male
2) Texas (jackson-bob-pat@cox.net)
3) Emphysema
4) 54   
5) 56
6) Bronchitis
7) No. Not really SOB   
8) Chest x-ray (part of physical exam)
9) My regular MD. It wasn't a problem
10) None needed at that time
11) Combivent, Atrovent, Foradil, Flovent Rotadisk (250 - 2 puffs daily)
12) Advair (500/50)
13) Uniphyl (400 mg), Zyrtec (10 mg), Aqua-tabs (1 per day), Captopril (25 mg-2x day), verapamil (360 mg), Quinine Sulfate (260 mg), Ambien (10 mg)
14) Prednisone, Allegra, Singulair 
15) No
16) Allergic reaction to Prednisone
17) No re-hab. Was working full-time
18) No. Not so effective as inhalers
19) Yes. 24/7. 1 LTM at night, 1.5 LTM at rest, 3-4 LTM with activity
20) Any temp between 40 and 80 is fine. But I live in West Texas! Also, sensitive to pollens
21) No
22) Was on SSD at age 62, now reg SS
23) Medicare and Medi-gap (plan F). No med coverage
24) No
25) Yes. E-mail anytime
26) Love this group!
27) Former
28) Yes. Water exercise 5 days a week
29) Currently using the new Z-PAK (3 pills, 500mg each). Hope it works!
30) No

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1.Gloria A Jacobs  1935 female
2.arizona  gloriaj@c2i2.com
2a    no
3.copd
4.54
5.42
6.shortness of breathe
7.eventually
8.cxr.pulmonary function abg ct of lungs
9. if i had totally undertood my condition I would have stopped smoking and looked for a transplant place as i was still young
10.no
11.Atrovent, 4 times a day, Serevent 4 times a day Flovent 4times a day these are all two puffs
12.Aerobidprednisone17
13.no oral meds pertinent to my disease
14.not applicable
15.was taking zoloft 5o mg. per day but have not used it in 2 years
16.When I was taking Prednisone tablets I ate like there was no tomorrow and had agreat deal of skin bruising
17.yes,treadmill and bicycle and swimming
18yes, atrovent and albuterol
19yes, 2 and a half liters at  night PRN during the day
20.no
21no
22no
23yes
24 no my disease is too fiffuse for lung volume reduction
25yes
26 I am a retired RN so my help is from knowledge and experience
27former smoker
27yes
28 zithromax biaxin or septra
29.yes i exercise   sorry i mixed the last two nymbers.
30 yes at my own insistence great deal of skin bruising

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1Karen Jacobs 1937 female
2NC irenic_us@yahoo.com
3Emphysema
4 62 1999 but in Dr records in 1989
5 I had symptoms for a long time but didn't know it.
6 ER Hospitilized unable to control body functions
7 No
8 Lots I was in ICU 10 days
9 Internist but No I received more information here than anywhere
10 Unknown
11 Was given Azmacort and BP shot up so I quit taking it.Dr said to keep taking but I was afraid to.
12 This is all I have taken
13 None one aspirin a day
14 haven't taken any
15 No
16 Azmacort Increase in Bp to dangerous level according to health nurse which was seeing my mother at the time As the azmacort wore off Bp dropped. Nurse was there and kept taking it because I felt so bad.
17 Yes Re-Hab in hospital which was treadmill and stationary bikes.This was after I was out six months.
18 Albuterol Sulfate 2.5 mg/3 ml in nebulizer no more often than every 4 hrs.
19 Use oxygen prn suppose to be on 2 liter at night by concentrator but don't use. I was always waking up with the tubes out and sleeping on them. Have a carry tank I take with me but seldom use.Probably need it more than I use it.
20 I am heat and cold intolerant, have bouts of incontinence, Only sleep 4 hrs at a time but that has been most of my life.I was diagnosed with connective tissue disease in 1989. So was on a lot of different drugs then.
21 No given Disability in 1989.
22 full disability
23 Medicare only Yes insufficient
24 No
25 Yes I am happy to answer questions E-mail is best for me. Always put Efforts in subject line so I won't delete
26 Not enought education to the public on COPD Myself included I had  no idea what it was or anything about it. I was a paralegal for 15 years which did Social Security Disabiliy cases. I worked with Legal Services and carried my own caseload. I represented clients in Adminstrative Hearings  for disability. I never had an emphysema case. I think this was because by the time Drs told the person they had it, they were so sick they were unable to get to office for help and were an automatic approval for disability.My cases consisted of disabilities I had to fight the system to obtain for the client.
27 Smoker about 50 years Stopped Jan 31, 1999 Day I was put in ICU
28 Yes I go to the grocery store and Wal-mart I walk my little dog (6# Precious) I drive and love to drive. I have friends that come by and want me to drive them around to pay bills and Drs appointments. I still do some needle work (cross stitch) and cooking. Much
slower and more planned than I used to be. I have a stationary bike I don't use enough. I have trouble with ankles and Knees due to the connective tissue problem. Used to be able to get shower,dress and on the road packed for a road trip within 1 hour. Now
lucky to be showered in an hour. Then need breathing treatment before I get shower. That is 15 to 20 minutes. Oh well I still enjoy living.
29 I guess it is prednisone
30 No not that I know of.Unless they did it when I was in ICU. The 1st 4 days I don't remember.

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1. :  Karen Jacobsen, 1958, female
2. :  Jakob43@MSN.COM
3. :  Chronic Bronchitis, Emphysema
4. :  45
5. :  40
6. :  Fell into a wall going up a flight of stairs
7. :  Yes in Chicago
8. :  Spiriometer, blood gases, etc.
9. :  Doctors, I learn more here
10. : no
11. : Atrovent, Flovent, Serevent and Albuterol
12. : Advair
13. : Zoloft 100mg, Enalapril 10mg, Zocor, Dierutic
14. : Enalapril, not working well, blood pressure still high
15. : Yes Zoloft 100 mg.
16. : not really
17. : Soon I will start
18. : no, but I need one
19. : no
20. : Hot, cold and trouble sleeping
21. : I am on SSDI.
22. : Full
23. : will be on Medicare in 3/04
24. : no
25. : sure  email is fine
26. :
27. : I smoked for 30 years, quit 3 years ago
28. : not really , but I plan to soon
29. :
30. : no, but I would like to be

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1. :  Dottie James 1934  female
2. :  WV  dottie@teazles.com
3. :  Emphysema & Fibrosis
4. :  60
5. :  60
6. :  SOB
7. :  NO
8. :  Don't remember. Ruled out heart disease
9. :  Last  summer had pulmonary test, CT scan and chest exray. I go to the VA.  and have been unable to see the Pulmonary Doctor . I need more information
10. : No. I have been on and off of different inhalers for 11 years.
11. : Atrovent 4 puffs 4 times a day.  Seravent twice a day and Pulmocort twice a day and Oxygen 24/7  Albuterol PRN
12. : Foladil (sp) Did not agree with my system
13. : Priolec 20 mg bid Atenol 25 mg, Levothyroxine .o25 mg. , Aspirin 81 mg. , Hydrochlorothiazide 25 mg. Prozac 20  mg  Doxepin 75 mg
14. : Don't know
15. : Prozac 20 mg,. Doxepin 75 mg
16:  Just Foradil
17. : Had re-hab 9 Years ago.
18. : NO
19. : Yes 2 liters except when exerting then 3 liters Been on O2 a little over a year
20:  Intolerance to cold, Lots of aches. Acid reflux
21. : We have our own business making Christmas Tree Ornament.  We have let the business decline due to health and are trying to sell it now.  It is just getting to much  for us.
22. : I am on Social Security Only
23. : No Private Ins. Have Medicare but VA takes care of all my health needs
24. : NO
25. : Yes.  When ever.
26:  My O2 level on oxygen is in the mid 90's.  Walking without oxygen I drop to low 80's,  I don't have mucus , a cough or bronchities.  Hardly ever get a cold or real sick.  Just sinus.
27. : Yes smoked 2 pack a day for 40 years. Quit smoking 12 years ago
28. : No really.  Keep trying to.  I stay as active as I can doing most of the daily things--just do things slower and rest.  We have stairs that I go up and down all day..
29. : Haven't had any recently so don't remember.
30. : No, I need to find out if I have mostly emphysema of fibrosis. Got the E diagnosis 11 years ago and just got the fibrosis diagnosis this fall.  My father was a smoker and died from emphsema.

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1. :  barry johnson,  1940 male
2. :  maryland   kandbjohnson@comcast.net
3. :  chronic bronchitis and emph
4. :  61
5. :  57
6. :  emergency room due to breathing diff
7. :  yes
8. :  chest x ray
9. :  no
10. : no
11. : duoneb and combivent
12. :
13. :
14. :
15. : celexa and wellbutrin
Q16:  no
17. : yes
18. : albuterol duoned\b
19. : no
Q20:  no
21. : full time
22. : no
23. : hmo no
24. : no
25. : yes
Q26:
27. : former
28. : yes
29. :
30. : no

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1.Boneita Laura Johnson,1947,F
2.New Mexico, lollypop_pop@yahoo.com
2a. No
3.Emphysema, Acute Bronchitis
4.1993
5.45
6.Acute Bronchitis
7.No
8.Xrays & Bloodtests
9.Family Dr.,No
10.No
11.Serevent 2 puffs every 12 hrs., Albuterol 2.5 & Ipratropium.5mg
in Nebulizer every 4 hours & Combivent for emergency use.
12.Azmacort
13.Vitamin C-1000mg once a day
14.None
15.No
16.No
17.No
18.No
19.Yes. 2lt for 7-8hours at night every 24 hours
20.Freeze in the cold & low energy in the heat, heart burn{acid reflux}
21.Part time as school crossing guard
22.Full disability
23.Medicare. Not sufficient coverage
24.No
25.Yes
26.This has drastically changed my life style & it has really taken some adjustment but after over 2 years I am finally getting used to it. It left me feeling very useless. Like a third wheel that was broken.
27.Former smoker
28.Not formally but I do have an exercise bike & plan on starting using it as I am a Slimming Bee
29.Cannot remember, my Dr. changes them every illness
30.No. I did have a lot of relatives who had Emphysema

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1.  Carl Johnson*, 1930, Male.
2a.  No.
3.  Emphysema.
4.  60.
5.  60.
6.  Pneumonia.
7.  Yes in 1997.
8.  XRay and PFT.
9.  PFT Tech.
10.  No.
11.  Albuteral inhaler as needed.  Atrovent - three puffs, four times a day.  Advair - 500.50 - one puff two times a day.
12.  ?
13.  Theophylline - 300MG two times a day.  Singulair - 10MG at evening meal.
14.  ?
15.  No.
16.  No.
17.  I have been throught Re-Hab three different times.
18.  Yes.  Albuteral - four times a day.
19.  Yes.  24/7.
20.  Heat and cold affect me quite abit.
21.  No.  Retired from USAF.
22.  No.
23.  Medicare and Tri-care.  Sufficient so far.
24.  I  have appointment with Mayo Clinic 28 May 2003 for LVRS evaluation.  Am really concerned as to whether I should have it done .  I feel good most of the time and it worries me that the LVRS might complicate things.  The main problem I have now is that I get extremely short of breath when I try to do too much.  We`ll have to see about this one.
25.  Yes would welcome comments from others.
26.  Had cancer of the larynx.  Removed by laser surgery in 1997 after 35 sessions of radition failed.
27.  Former.  quit 1990 - a little late though.
28.  No.  I have the equipment.  Bike, treadmill, weights - my wife uses them though.- not a complete waste.
29. Not certain about most effective.  I don`t have much trouble with upper respiratory infection, but have trouble with lung infections.  Right now am on a four week rotation of Cephalexin - 500MG four times a day for seven days and Sulfamethoxaxole AMD - four times a day for seven days.
30.  Don`t believe so.

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1. :  Donald Jones 1921 Male
2. :  California, dbjones@winfirst.com
3. :  Emphysema
4. :  80
5. :  80
6. :  CT scan
7. :  NO
8. :  PFT
9. :  RRT yes
10. : no
11. : Foradil, 12 mcg, Aerobid 2 2/day, Combivent, 2 as needed
12. : Albuteral Sulphate
13. : none
14. : forgotten
15. : no
16:  no
17. : yes
18. : no
19. : no
20:  cold, extreme heat
21. : no
22. : no
23. : medicare
24. : no
25. : Yes, anytime by e-mail or by phone
26: 
27. : former, quit 34 years ago
28. : yes
29. :
30. : no

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1.Glenda Jones*   born 1947,  female
2. Kentucky , gjones@iclub.org
2a. no
3. Asthma,emphysema
4. 40
5. 37
6. shortness of breath
7. not then
8. X-rays
9. No not really at the time
10.  no
11. combivent,three to four times a days two puffs each time,flovent and serevent two puffs twice a day
12. I don't really know.
13. blood pressure once a day 20mg,
14. don't know
15. yes,.xanax. when needed half of 0.5mg
16. no
17. oh yes,rehab very very important for people with lung disease. I think you will see great improvements in your physical condition
after rehab. If I was to put a percent on how much rehab can help a person with a breathing problem I would have to say a hundred percent in my opinion. I would also like to express the most important things to me that I learned in rehab was the purse-lipped breathing and how to cope with my anxiety that comes with this awful disease. I would recommend rehab to everyone with a breathing problem.
18. no
19. yes, at night and exercising
20. no
21. no
22. yes
23. I have Medicare and private insurance that I had when I was working.
24. yes, going to have the lung reduction surgery don't know when yet.
25. yes..
26. Please think twice before you smoke. If you smoke now,please stop. I would never wish this awful disease on anyone. Breathing is a life function you can not live without,but cigarettes you can.
27.  yes
28. oh yes exercise is so very important with this awful disease.
29. I don't really know that.

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1. :  Kathleen Jones   1945     female
2. :  GA   kjones1311@aol.com
3. :  all three
4. :  48
5. :  48
6. :  emergency room
7. :  no
8. :  x-rays,  etc
9. :  intenal medicine
10. : no
11. : advair, comivent
12. : plain albuterol
13. : accolate, slo-bid, prednesone,
14. : none
15. : no
16:  prednisone--extreme fullness of face and other weight gain
17. : recently, but they have not yet begun due to my work schedule. I need some type of pulmonary exercises I can do at home
18. : yes; ipratropium bromide and albuterol
19. : no
20:  yes--intolerance to heat & cold, incontinence lack of circulating air
21. : full and part time
22. : no
23. : PPO
24. : no
25. : yes  e-mail
26:  my condition  severely hinders my life style
27. : former with occasional short slips
28. : no
29. : Ketek  and Tequin
30. : I have emphysema

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1. :  June Johnson, 1944, female
2. :  California, jcjohnson@sbcglobal.net
3. :  Emphysema & Chronic Bronchitis
4. :  60
5. :  I've had problems with stairs and hills for years, even while still smoking.
6. :  gurgling in chest when exhaling
7. :  not at first
8. :  Chest Xray, CT scan, bronchocopy, sputum test
9. :  Internist, then pulmonologist
10. : no
11. : two inhalations of both Albuterol and Atrovent twice daily or every 2 hours
12. : n/a
13. : none for COPD
14. : n/a
15. : no
16:  no
17. : I was diagnosed with lung cancer and had my right middle lobe removed. When chemo is over in March, I will go to pulmonary rehab.
18. : no
19. : yes--24/7 at 4 liters/hr & 5 with exertion
20:  much more sensitive to cold than before E, some insomnia 21. : am on sick leave while receiving chemo, but intend to return to work in March
22. : currently on temporary sick leave from work
23. : Company sponsored, co-pay is $10 for Dr visits and $10 or $20 for meds
24. : no
25. : yes, via email, jcjohnson@sbcglobal.net
26:
27. : Stopped smoking 20 years ago
28. : prior to cancer surgery I exercised 3-4 days/wk, now very rarely, but intend to resume after last chemo treatment
29. : I've only taken one --Avelox for Moxifloxacin
30. : no

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1. :  Lisa Johnson, 1968 F
2. :  Ohio    lisajean@fuse.net
3. :  Asthma & Emphysema
4. :  35
5. :  35
6. :  Never recovered from pneumonia
7. :  no
8. :  pulm function, methacol challenge
9. :  internal specialist - still working on that, diagnosis is very new still
10. : no
11. : advair 10050 x 2
12. : n/a
13. : n/a
14. : n/a
15. : no
16. : not that I've noticed yet
17. : no, more exercise - start easy and build up if possible
18. : no
19. : no
20. : incontinence, dizzy, headaches, always tired but can't sleep due to cough, lack of concentration
21. : FT
22. : no
23. : private - yes for now
24. : no
25. : yes - email
26. :
27. : former social smoker
28. : yes but not as much as I'd like
29. : z-pack or Biaxin
30. : yes - negative

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1. :  Valerie Johnson 1942  Female
2. :  NJ  veeajay4711@aol.com
3. :  Emphysema, Asthma
4. :  50
5. :  50
6. :  coughing
7. :  yes
8. :  ABG, x-rays, PFT
9. :  pulmonary doc        No
10. : no
11. : combivent, 4X a day, flovent 220 2x a day, Albuterol as rescue
12. : Serevent
13. : Accolate 2x a day, Fosamax once a week,Diovan HCT 2x a day
14. : Serevent
15. : no
16:  Serevent (shaky): Advair (heart pounding),
17. : yes..
18. : no
19. : no
20:  YES
21. : No
22. : Yes
23. : Medicare and Private as Secondary
24. : no
25. : yes
26:
27. : Former
28. : As much as possible
29. : Zithromax
30. : no

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1. Samuel C. Jones, 1952, Male
2. Ohio(Cleveland) - cletleophi@aol.com
3. emphysema
4. 46
5. 44 - maybe earlier
6. weight loss
7. primary doctor has a pulmonary speciality
8. oxygen saturation reading, CT scan, x-ray, & all that other stuff
9. University Hospital Pulmonary Dept & Cleveland Clinic Lung Transplant Dept
10. no
11. Combi-vent, 2 puffs 4X daily; Vanceril, 84mcg, 2 puffs 2X daily
12. Atrovent (sucks)
13.Prednisone 5MG taper (4-4-3-3-2-2-1-1) as needed
14.THEO-24 200MG
15.n/a
16. #14 above - insomnia/shakes/general medicine head (sucks)
17. none yet - Clinic transplant dept is supposed to put on program
18. no
19. yes; 24/7; 2l/min concentrator at home LOX back-up & portable
20. all - weather/pressure changes = increased chest pressure
21. stopped December 31, 1998
22. filed for full (?)
23. HMO - yes
24. University Hosp of Cleveland evaluated for LVRS, ruled out due to advancement of disease, approved for transplant at Cleveland Clinic pending futher testing.
25. yes - anytime
26. really hate not being able to breathe normally, but love being alive
27. former as of 8/11/98
28. no
29. n/a
30. three(3) times - all negative. wonder why?

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1-Betty Jordan, 1937,F

2a-no
3-emphysema, chronic bronchitis, bronchectasis
4-57
5-45
6-respiratory collapse and double pneumonia, went to ER
7-yes
8-spirometry,lung volumes, diffusion, and maximal respiatory pressures
9-hospital pulmonary technician,no
10-no
11-Serevent 2puffs 2xday, Atrovent 2 puffs 4x day, Ventolin 2puffs as needed nto more than 4 times a day
12-Flovent, Azmacort
13- take antibiotic one week each month, rotate between, Septra  DS 800/160 tabs 1 tab 2xper day, doxycyline 100mg caps 1 cap 1xper day, amoxil  875mg tabs 1 tab 2x per day.
14-no opinion
15-no
16-flovent, tightening of chest when inhaling med
17-no
18-no
19-no
20- problems with incontinence, sleeplessness, intolerance to humid conditions.
21-retired
22-no
23-yes,yes
24-no
25-yes
26-I have had lung surgery on 1968 on both lungs due to TB. The procedure was compared to "plugging a watermelon".  This was done in a state sanitarium that is no longer operating so there is no way to get a better description. It may have been a form of LVRS.
27-former
28-yes
29- not sure
30-no

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