Profiles: M
Deceased members are noted by *

 

1. :  Mary Mabe,1958,F
2. :  MMabe2@houston.rr.com      Texas
3. :  Chronic Bronchitis, Emphysema
4. :  42yr
5. :  40yr
6. :  Pneumonia
7. :  yes
8. :  breathing,exray
9. :  Medical Doctor(family)
10. : n/a
11. : Atrovent,Abuleratal 2puffs @ 4 times a day
12. : ukn
13. : singular
14. : ukn
15. : no
16:  no
17. : no
18. : Albuteral
19. : when needed
20:  too hot I caugh.
21. : disabled
22. : full
23. : husbands, not sure yet
24. : no
25. : not sure
26:  n/a
27. : tes
28. : no
29. : 12 pack
30. : no

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1. :  Charles Macallister 1945 M
2. :  cmacalli@rochester.rr.com
3. :  Emphysema
4. :  55
5. :  50
6. :  Regular check ups
7. :  Yes
8. :  Breathing
9. :  Doctor/Hospital Yes
10. : No
11. : Spiriva, Advair 500/50 Combivent or Albterol Neb
12. : Don't know
13. : Singulair, Verapamil 240, Vitimin B1 100mg, Potassium 40mg, Paxil
25cr, Frrosemide 40mg, Prevacid 15mg
14. : Don't Know
15. : Paxil 25CR
Q16:  No
17. : Exercise... Bicycling
18. : Albutorol
19. : Yes 4L on demand during walking and 2.5 L frm concentrator while
sleeping.
Q20:  Sleeplessness, Feet get cold quickly, restles leg.
21. : No
22. : Neither as of yet
23. : HMO and Medicade
24. : No
25. : Yes... anytime
Q26:  I think this site is great and am glad I found it.
27. : Former... off almost 1yr.
28. : Not at this time due to leg problem
29. : Augmentan
30. : Don't Know

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1. :  Michael MacDonald, 1956, Male
2. :  MA, miike@mmacdonald.com, No
3. :  Emphysema
4. :  45
5. :  45?
6. :  Routine x-ray
7. :  No
8. :  X-Ray initially; eventually CT-Scan, etc
9. :  Initial tests were from PCP followed up by pulmonologist and then surgeon; no, did not receive anywhjere near enough information
10. : No
11. : None
12. : None
13. : None
14. : None
15. : None
16:  N/A
17. : None
18. : None
19. : None
20:  Intolerance of heat, sleep apnea, insomnia
21. : Employed full-time (but on disability leave at this moment)
22. : Currently full disability; anticipate return to work eventually
23. : Private insurance, coverage is adequate (just)
24. : Had LVRS on right lung, am to have it on left lung
25. : Yes
26:  I'm new to all of this
27. : Former (quit last century)
28. : Tried to, unable to exercise at the moment
29. : I don't have probs with infections
30. : Yes with inconclusive results; one doc says yes, another no

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1.Marie MacPherson  1934 Female
2.Pennsylvania   mmp1219@epix.net
3.Emphysema
4. 64
5. 62
6. SOB for short walks  Coughing ,phlem,tired,depressed
7. no
8.Pulmonary function and chest exray
9.Family doctor,internist-just told me on phone that the tests came back and I have very bad case of Emphysema,ordered me inhalers and I went to his office to show me how to inhale them .He told me to stop smoking. Nothing else was said.No I
did not receive any information about Emphysema.
10.Yes for one week for any reactions
11. Azmacort   2 puffs  4x daily ----Atrovent  2 puffs  4x daily
12.none in past
13.actifed for sinus
14. --
15. No,I don't like taking meds unless
absolutely necessary.
16.No
17.No
18.No
19.No
20.some intolerance to hot and cold--sometimes when I come up the stairs and am out of breath there is pressure on the bladder. Worst are hot and humid days
21. No
22. No
23.yes private and will be on Medicare too in December.
24. No
25. Yes
26.stopped smoking for 4 months and gained weight mostly in stomach,also lot of gas-  Started smoking again the past 2 months
(3 a day) I feel worse .Today I quit again.(husband smokes) 27.Smoked 50 years and tried to quit several times,tried patch
28. yes, some situps, stretching, and deep breathing,holding in and letting air out slowly,short walks
29. Haven't needed
30 No

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1.   Jim Malone, 1935, male
2.   UK jim@malone78.freeserve.co.uk
2a.  No
3.   Emphysema (complicated by Bronchiectasis)
4.   63
5.   61
6.   Increased breathlessness when exercising
7.   Yes
8.   PFT and CT scan
9.   Pulmonologist, No
10. Yes
11. Atrovent 1 x 4(40 micrograms) plus Salbutamol as required
12. To close to call
13. None
14. Have only take Prednisolone 30 mg/day over 7 day periods, any antibiotics taken for lung infections seemed equally effective.
15. No
16. Skin rash reaction to Atrovent or Salbutamol
17. No, No
18. Occasionally, Atrovent and Salbutamol
19. No
20. Intolerance to cold
21. Retired
22. No
23. Yes, No
24. No
25. Yes, Anytime, E-mail
26.
27. Former
28. Yes
29. Augmentim
30. No

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1. :  Mike Mann, 1/4/1938, M
2. :  Florida
3. :  Emphysema
4. :  61
5. :  55
6. :  Sent by Urologist concerned that I could survive surgrey.
7. :  Yes
8. :  Complete PFT and arterial gas test
9. :  ??
10. : No
11. : Advair 250/50, Spiriva
12. : Not sure
13. : List too long for the space
14. : Not sure
15. : No
Q16:  No
17. : None Available
18. : Have one with Albuterol but never use.
19. : At nigth with CPAP, occasionall otherwise.
Q20:  Heat, makes it hard to breath
21. : Retired
22. : No
23. : HMO, excellent
24. : No
25. : Yes, e-mail, phone
Q26:
27. : Former - over forty years
28. : No
29. : Don't know
30. : No

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1. :  Robert Mansfield 1950 Male
2. :  Australia(Victoria) 50rob_mans@aanet.com.au
3. :  Emphysema
4. :  43
5. :  43
6. :  out of breath when walking
7. :  No.Later by another GP
8. :  xray
9. :  GP. No just told to stop smoking
10. : No
11. : Spiriva 18mcg, once per morning
12. : only taken Spiriva, not sure it does that much
13. : no oral medications for emphysema
14. : no oral medications for emphysema
15. : Yes. Cipramil 20mg by 2.5 per day
Q16:  No
17. : Not at first..Later went to Breath Easy Classes
18. : No
19. : No
Q20:  Heat and humidity also fatigued late in the day
21. : retired
22. : No.l'm on supperanuation pension
23. : Privite Heallth insurance plus Medicare(Australia )
24. : No
25. : Yes.Email
Q26:  l now see a pulmonologist.FEV1 47%
27. : Former.Gave up 8 years ago
28. : Yes.Walk most days of the week for 35min.
29. : Quick  walking while swinging arms
30. : Yes.negitive

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1.  Laura Mangum, 10-18-47  Female
2.  MS    lauram@intop.net
2a.   No
3.  Asthma, COPD mild bronchiectasis
4.  1992
5. Asthma since age 2
6.  I have been going to doctors all my life with asthma and allergies. When I was told I had mild obstruction, I dismissed it because doctor was trying to get me to stop smoking.
7.  I have been seeing pumonologist since 1977.
8.  Spirometry,  ABG, chest x-ray,  CT Scan
9.  Pulmonologist, no explanation, just told to stop smoking.  I learned more about my condition  by joining EFFORTS and internet research.
10.  No
11.  Serevent 2 puffs 2 time day.
       Flovent 220  2 puffs 2 times day
        Atrovent 2 puffs every 6 hours or in nebulizer
        Albuterol as needed, 2 puffs every 6 hours or in   nebulizer.
12.  Tilade
13.  Singulair 10 mg. once daily
        Prednisone, tapered dose or injection, as needed
        Antibiotics as needed
         Humibid LA  2 times daily
14.  Accolate
15.  Wellbutrin SR 150 mg. one daily
        Xanax  .5 mg or Klonapin  3 times day
        Celexa 20 mg. daily
         Ambien 10 mg as needed
16.  Erythomycin caused toxic hepatitis.  Sensitive to many medications.
17.  No. No.
18.  Omron Micro Air and Pulmo-Aide. Albuterol and Atrovent.
19.  No.
20.  Intolerance to cold, heat and terrible insomnia.  Recently experiencing sweats.
21. No
22.  Full disability
23.  Medicare and supplemental insurance through risk pool.
24.  No. I didn't know about LVRS until joining this group.
25.  Yes. email.
26.  None at this time.
27.  Smoker.
28.  Not on a consistent basis.
29.  I haven't found an effective antibiotic.   Usually use Levaquin, Doxycycline, or Cipro.
30.  Not to my knowledge.

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1. :  Betty Marcalus,1934,female
2. :  Maryland, vbmarcalus@msn.com
3. :  chronic bronchitis,Emphysema
4. :  52
5. :  62
6. :  annual physical
7. :  not until I asked to be
8. :  chest xrays,spriometry, ABG
9. :  a pulmonologist and I did my own research on this disease, docs do not educate enough
10. : no
11. : combivent prn for severe distress, nebulizer 3 to 4x a day
12. : advair and now spiriva
13. : Sinulair 1 OD , synthroid 100.0 OD ,asa gr1/4, toprol 50mg hs,lipitor 20mg hs
14. : all effective
15. : no
16:  maybe the toprol .....
17. : did that 18 months ago, use treadmill daily
18. : yes, with albuterol
19. : yes, every night and prn during the day
20:  cold always have...heat now as I'm older, sleep better now with the O2
21. : no
22. : no
23. : medicare and BC/BS
24. : no
25. : yes
26:  great site with lots of good info
27. : former
28. : treatmill and do my own house work and shopping
29. : ? Lincosin not sure of name
30. : yes and it was negative

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01.  Constance Marcele Mann, 07/09/47, Female
02.  Utah, cmmann@ppco.com
2a.  No
03.  Emphysema
04.  47
05.  Guessing - 40
06.  Failed lung function test to qualify to wear full face respirator
(work
related)
07.  Yes
08.  Full battery, less cat scan
09.  Pulmonologist, No
10.  No
11.  Flovent (2 puffs twice daily)  Serevent (2 puffs twice daily)
12.  Atrovent
13.  None relating to "The Big "E"
14.  N/A
15.  No
16.  No
17.  No, No
18.  Not at the present, have used one, Albuterol at that time
19.  No
20.  Incontinence, sleeplessness, hair loss, red flushed neck, cramping of hands and feet.
21.  Full Time
22.  Not yet
23.  HMO, haven't used much of the benefits, we'll see as the disease progresses
24.  No
25.  Yes
26.  Consensus of medical oppion, my Emphysema caused by industrial accident.
27.  Former
28.  No
29.  Azrithromiacine
30.  No

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1. :  Domenic E Marcelli ,1933.M
2. :  N.J. spindle-dm@comcast.net
3. :  Emphysema
4. :  62
5. :  58
6. :  Regular visit
7. :  66
8. :  P.F.T
9. :  Doctor at Tempel Hospital     Yes
10. : NO
11. : Combivent  3 Puffs when away from neblizer
12. :
13. : O2-24/7,Humibid 600mg,Predisione 10mg,Tylenol Allergy&Sinus
14. :
15. : Yes- Klonopin,1mg, Lexapro Escitalopram 10mg
16. : NO
17. : Did Pulmunare Rehabe
18. : Albuterol Sulf 0.083%& Ipratropium Bromid0.02%
19. : 2-L  24/7
20. :
21. : No
22. : Partial
23. : Medicare, & Du Pont Aetna
24. : to old 4 transplant, didn't gulify for LVRS
25. : yes
26. :
27. : Former
28. : sometime
29. : Augmentin 875mg
30. : ?

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1. :  sue ann marconi 10/14/52 F
2. :  new york,suzy54@optonline.net  no
3. :  emphysema
4. :  45 or 46
5. :  about 50yrs old
6. :  alot of infections
7. :  yes
8. :  lung volume test and lung scan
9. :  my pulmonologist,and no not back then
10. : no
11. : advair,spiviar250/50
12. : none
13. : singular 10 mg.
14. : no
15. : trazadone,10mg.2xday
16:  no
17. : yes just,after I come home from the hospatil
18. : yes,xopenex,I didn't like it.
19. : no
20:  yes from very cold to very hot
21. : no
22. : no
23. : husbands insurance
24. : no I would like to.
25. : anytime
26:
27. : yes
28. : walking
29. : bixoin
30. : no

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1. Pamela Maree 1951 Female
2. Walpole WA 6398 Australia email above
3.ASthma Emphysema
4. Cronic asthma 4yr ago Emphysema just recently
5.
6.  shortness of breath  at times wheezing  coughing
7. No
8.
9.
10.no
11 Intale releiver   ( Buteyko breath method)
12. unknown seems like lots
13. Prednisolone 10 mgs and sometimes more
14.
15.
16. Crazyness, loss of memory  depression  paper skin bleeding haemriods
17. waiting to see specialist on 14th april
18. Reiki when it is available
22. At present on sickness benefit. Finding it very difficult to have any work
23.No
24.No
25. Yes through email or icq
26. I have felt very isolated and feeling  as going crazy in the head
27. yes about 20 to 15 yrs not in last 5yrs
28. I like to walk when it is possible
29. unsure
30. No

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1. :  Daniel Marsh 1939 / male
2. :  Texas  //  dmarsh@gvtc.com
3. :  Asthma, and Emphysema
4. :  61
5. :  50
6. :  I was suffocating
7. :  No
8. :  02 sats./x-ray/blowing b b's in a tube/
9. :  Later on I had a full pulmonary work-up by pulmonologist.   YES
10. : Starting any new drug is a pre-test.  NO
11. : Asmanex bid / Albuterol 4 to 6 per day / Spiriva daily
12. : Can't think of any.  All since diagnosis have helped significantly
13. : Wellbutrin 150mg daily / Felodipine 10mg BID / Furosemide 80mg BID / Lisinipril 40mg daily / Atenolol 25mg daily / Ranitidine 150mg daily /Potassiun 10meq BID / Spiriva 1cap 18 mcg daily / Asmanex 220mcg BID /Combivent 18mcg Ipratropium Bromide & 103mcg Albuterol Sulfate each inhalation//2 Hits every 4hrs or more but no more than 12 Hits in any given 24 hr period;  otherwise PRN. /  And Over the Counter Meds include: All Daily / Multivitamin-Mineral / Vit. E 400IU / Vit C 1000mg / Calcium 1200mg + D / Aspirin 325 mg / Metamucil Dbl Dose Daily.
14. : Oh My.....50 years of medications???......The Personal Formulary has been extensive and early on side effects made many of them ineffective in that they were too difficult to stay on.  Sorry , faltering memory circuits shroud their names in the blessed fog of forgotteness.
15. : Wellbutrin 150mg daily /
16:  Prozac put me in a coma....well, very, very  drowsy at least.
17. : No
18. : No
19. : Yes, 24/7 @ 6lpm resting  /  8lpm moving about or using my arms and 10LPM  TO 15LPM when exercising.
20:  Surprised these might be considered 'unusual'. I've been dealing with all for years now.  They long ago metamorphed from being initially problematic to just my normal experience of aging.
21. : No, and haven't been for 6yrss now.
22. : I was initially but have been living on my social security check for the past 4 yrs.
23. : Medicare only  //  Yes, very grateful for all the help I am getting. Because I attempt to survive below the poverty level I find myself eligible for nearly everything offered by Federal, state and the few local support systems.  I struggle but when I look around my own country, let alone the rest of the world, I am embarrassed to  admit I have a total of $929.00 a month to work with.  Forced to live closer in to obtain public transportation and access to my doctors, my rehab facilities and the medical facilities I depend on My rent and utilities take $450.00 of that monthly.  I live in a very modest  one room cabin but needing to run  a heat producing oxygen concentrator 24/7 and the attendant air condition neccessary to know any degree of comfort here in Southern Texas.........well I belabor this question, my apologies.
24. : No
25. : For Sure, I welcome any inquires...........Any time by Email, and if you would like to speak by landline (telephone), Just Email me your phone number and I will gladly return a call.  I am home nearly all the time (this disease tends to lead us there) and except for my daily rehab program between 9am and noon I'm around.  Would love to hear from any one.
26:  I should add I had  Fast-Track Transtracheal  surgery a year ago and can't say enough good  nor praise it too greatly.  It is a very individual choice but  I found nothing workable with the nasal cannula, a disaster. So I am immensely grateful to Dr Hiemlich (sp?)  and to Mr. John Goodman, a leading light and a principle in the development of the Transtrachael
Systems Inc. out of Denver, Colorado.
27. : Yes.
28. :
29. :
30. :

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1. :  Anna Marshall 1947 female
2. :  annacritters5@aol.com
3. :  emphysema
4. :  51
5. :  51 im sure earlier
6. :  bronchitis stay in hospital
7. :  yes
8. :  blow to see how much you can expel
9. :  dr. no
10. : no
11. : advair250/50 combivent atrovent
12. : azmacort
13. : diabetes  advandamet  amyral and premarin
14. : na
15. : no
16:  no
17. : no
18. : albuterol sulfate ipatropium bromide
19. : no
20:  both heat and cold
21. : part time
22. : no  applied to soon to tell
23. : private no coverage is insufficient
24. : no
25. :
26:  efforts has helped me more than any doctor  so far
27. : former
28. : i walk at workneed to stop and rest often
29. : levaquin
30. : no

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1. :  Gertrude Louise Marsteller, 1934, F
2. :  New York, No
3. :  Emphysema
4. :  70
5. :  65
6. :  Breathing problems
7. :  yes
8. :  X rays, breath analizer
9. :  PCP, no
10. : no
11. : iprapropium bromide, 0.02% 25x2.5; azmacort
12. : don't remember
13. : lipitor 40mg, 1/2 tab per day; Furosemide 40mg one per day, protonix 40mg, twice a day; metformin hcl 500mg, twice daily
14. : none
15. : no
16:  abuterol, tremors
17. : none, walking
18. : yes , ipratropium bromide
19. : yes, 24/7  2 liters
20:  intolerance to cold, incontinence, sleeplessness
21. : no
22. : no
23. : Medicare, Community Blue (HMO); yes
24. : no
25. : yes, use email  tomgert@isp.com
26:  feel lack of medical information about my illness
27. : Yes, Former over 50 years
28. : no
29. : don't remember
30. : no

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1. Ed Martin, 1944, male
2. Orlando Florida, Quartz535@earthlinl.net
3. I have chronic bronchitis,asthma, and end stage emphysema, also colon problems.
4. first diagnoused 15 years ago  .
5. 5 years ago,
6. shortness of breath,
7. went to a pulm
8. exrays and all standard pulm test,
9. pulm....but I have recieved little info
10. no
11. serevent 2x2,combivent2x4,albuterol5 times a day nebulizer
12.
13. predisone 40mg a day,uniphil400mg,zantac2 a day,1500mg codine
14. reactios are not good but better than the alternative
15.
16. (see #14)
17. no rehab
18. yes
19. no oxegen
20. heat and humidity are bad, don't sleep much,mood swings [ask my wife about that  lol] 21. retired
22. on disability
23. private ins
24. can't have any surgery
25. always available for questions
26.
27. still smoking
28.
29.
30.

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1. :  Ted Martin 1942, male
2. :  NY, marttj@acmenet.net
3. :  emphysema
4. :  55
5. :  not sure
6. :  nothing,just went for regular check-ups
7. :  not until this summer( July 2005)
8. :  x-rays,CT scans
9. :  Dr. ,no
10. : no
11. : Advair  250/50, Spiriva 18mcg,DuoNeb
12. : not sure
13. : Theophylline 300mg, ToprolXL 50mg, Actos 30 mg
14. : not sure
15. : no
16:  not sure
17. : no
18. : yes ,DuoNeb
19. : yes, 24/7
20:  only sleep 2 to 3 hrs at a time
21. : retired
22. : no
23. : employer paid ins., yes
24. : no
25. : yes
26:  never really addressed the disease until this summer when i suffered a collapsed lung during a broncoscopy, took 2 weeks to re-inflate, not a fun time. so even though I've had this 8 yrs I'm only learning about it now.
27. : former - 50 years
28. : yes but not enough
29. : don't know
30. : no

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1. :  1. Randi Martin-Rude, 1947, female
2. :  2. Arizona randim-r@cox.net , 2a. none
3. :  Emphysema
4. :  56
5. :  54
6. :  SOB
7. :  yes
8. :  Xray, PFT, PST, CT scan
9. :  Pulmo, no
10. : NO
11. : SPIRIVA 18MCG, FORADIL 12 MCG, PROVENTIL (AS REQUIRED)
12. : ADVAIR
13. : none
14. : NO ORAL MED FOR EMPHYSEMA
15. : EFFEXOR 75 MG
Q16:  no
17. : no
18. : xophenx
19. : no
Q20:  no
21. : FULL TIME
22. : NO
23. : BLUE CROSS/BLUE SHIELD FEDERAL, YES
24. : NO
25. : yes
Q26:  EFFORTs is a life saver for me
27. : FORMER
28. : YES
29. : SHOTS
30. : NO
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1. :  Patti Martinez, 1950,  female
2. :  Ca  msfcm50@aol.com
3. :  asthma & chronic bronchitis
4. :  early 40's
5. :  asthma all my life,  chronic bronchitis in my 30's
6. :  continual treatments for entire life
7. :  yes
8. :  breathing test,  lung function test, arterial blood gas
9. :  my pulmonary doctor
10. : no
11. :  q-var 80 4 puffs twice a day,  albuterol 2 puffs 2-4 times a day
12. : serevent
13. : singular 10mg once a day.......theodur 300mg, twice a day......albuterol 4mg, twice a day
14. : n/a
15. : prozac 20mg once a day
16. : n/a
17. : no
18. : albuterol sulfate solution
19. : no
20. : I have a lot of problems with cold weather.  When I breath in cold air I always feel like I am being suffocated.  I don't sleep well because of the coughing I do everyday. 
21. : full time
22. : no, but preparing the paperwork for a medical retirement
23. : HMO (Kaiser)  my coverage is very good.
24. : no
25. :
26. : In addition to COPD I have also been diagnosed with Fibromyalgia and Chronic Fatigue.  Between all of these I am totally exhausted most of the time.
27. : former smoker.....stopped in 1991 with a 3 pack a day habit.
28. : no, can't breath sitting still, how can I exercise?
29. : none
30. : no

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1.   Daniel Martini 1952-Male
2.   1716 Bellevue Blvd. N., Bellevue, NE, 68005-4042
       (402) 734-4894
       dfmartini@compuserv.com
       dfmartini@juno.com
2a. My caregiver is my wife of 22 years (in May), Fern Mary Arenz Martini
3.   A1AD and associated severe emphysema.
4.   45 on August 16, 1997 (A1AD)  42 in May of 1994 when diagnosed with "severe asthma and 'recurring' Bronchitis". In Thousand Oaks, Ca, at Kaiser Permanente facility.
5.  Probably 1990 around that time I was having first sob problems and was told by a surgeon that I had heart problems. (This was later retracted by same Dr. after I  quit smoking, EKG became "normal" 6 months later)
6.  Shortness of breath (SOB) which was attributed to smoking 2 packs a day and an inguanal hernia.
7.  No.
8. In 1997, I was given a lung function test, a full blood work-up and a lot of x-rays.
9. Dr. Lee Bevilaqua recommended Dr. John Connoly (who ordered the tests). I recieved enough information to be a danger to myself.
10. Never.
11. Flovent   (220 mcg)  3 puffs B.I.D.
       Serevent  (21 mcg)   2 puffs B.I.D.
       Albuterol  (90 mcg)   PRN
12. Atrovent was the least effective rescue inhaler, Aerobid the least effective steroid.
13. Very occasional prednisone.  VERY occasional because I develop EXTREME manic/aggressive behavior, and  have no idea as to why it's not funny to go from zero to POSTAL in .000001 microseconds.
14. A WWII era prescription for "allergies" .  It's a combination of prednisone,  multivitamns, beta blockers, and some herbs(and spices?:0)
15. Not yet. (Does it seem that I need them?? Someday I'll grow up, then the next day I'll probably die)
16. Adverse reactions to Aleve(sp?)  and PREDNISONE.
17. Yes, Pulmonary re-hab, after Pneumonia in April of 1998. Walking, bicycling,  MINOR weights.
18. Occasional. In Md's office. Albuterol.
19. 24/7  2.5 lpm for sitting/sleeping  3 lpm for getting around outside. 4 lpm on the treadmill.
20. Intolerances :  Humidity above 55-60% (I grew up in CA dessert areas): Cold below  35 degrees is absolutely debilitating to me.
90% of all industrial/individual perfumes.
21. Not employed.
22. Just started the SSD trail in December 1998.
23  Prior to Jan 1,1999, HMO. PPO Jan1, 1999.  HMO was not bad. Don't know about PPO yet.
24.  Not yet.
25.  Yes.
26. Haven't I made enough??  UH.. EDUCATION would have saved me a lot of this trauma, my brother was told that A1AD was magic or something, that there was no treatment, no relief besides O2, and that neither his kids or siblings could get it.  He was diagnosed in 1990. Same year I quit smoking.
27. Former smoker quit in 1990.
28. Probably not as much as I should, but I try to alternate weights and walking.
29. Two.  ZPACK and Cefloxan(sp?).

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1. :  Tom Maruschak, 1946, male
2. :  Ohio, taw@centurytel.net
3. :  Emphysema
4. :  55
5. :  54
6. :  pneumonia
7. :  no
8. :  several not sure of names
9. :  Dr Stoller, Cleveland Clinc, yes
10. : no
11. : albuterol 2 puffs, spiriva, once a day, serevent discus bid, azmacort 4 puffs bid
12. : spiriva seems far more effective than atrovent and nicer to use
13. : none
14. : n/a
15. : wellbutrin 300 mg
16:  none
17. : insurance will not cover re hab apparently :/
18. : no
19. : 3 liters at rest 6 liters if walking 24/7
20:  can't breathe whewn its hot, incontinence to an extent but also have prostate problems, need lots and lots of sleep
21. : no
22. : yes full
23. : supermed and medicare A only, it won't cover rehab.. aside from that prettgy much yes
24. : no
25. : not at this time perhaps later
26: 
27. : former 4 packs a day for 40 years
28. : minimally
29. : n/a
30. : no

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1. :  Judy Masters, 1946, female
2. :  Oregon justmasters@charter.net
3. :  Emphysema, asthma
4. :  48
5. :  Smoker's cough from early 20s
6. :  Pneumonia
7. :  no
8. :  x-ray
9. :  MD, not much information given
10. : no
11. : Combivent 2xday; Advair 50/250 2x/day; ventilin as needed and albuterol as needed
12. : I have been on these for so many years I can't remember the others.
13. : Nothing for COPD
14. : The only oral med I have take is prednisone.
15. : no
16. : none
17. : I have gone through pulmonary rehab and it was suggested that I do chair aerobics but I am waiting on my Medicare as I can't afford the classes.
18. : Yes, albuterol
19. : no
20. : Sleeplessness.  I sometimes lie awake for 2-3 hours.
21. : No
22. : Yes social security disability
23. : Private insurance and medicare soon 2004
24. : no
25. : Yes
26. :
27. : Yes
28. : Not as much as I would like to.
29. : anything but penicillin as I am allergic
30. : no

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1   Richard Masters    1927     Male
2   Ohio   rmasters@1st.net
3   Emphysema {severe}
4   63
5   60
6   Hospitalized with Bronchial Pneumonia & diagnosed there.
7   Yes
8   Complete breathing test at hospital.
9   A certified pulmonologist and I feel that he was very clear on my problem.
10 Not to my knowledge.
11 Presently using Proventil & Atrovent inhalers as needed when nebulizer is not available.
12 Did take azmacort and not effective
13 No oral medicines for emphysema, but Lipitor and Lanoxin for other problems.
14 None
15 No
16 No
17 Yes. Did a 6 Week rehab at local hosp. Upper body,treadmill,bicycle,etc.
18 Yes Use proventil & atravent 4 times a day.Use a proventil inhaler in between when necessary.
19 Yes Use oxygen all night and during any exertion. Use when on treadmill or walking anywhere.
20 Can't take a very hot shower.extreme heat or cold is bad
21 Yes
22 Am employed part time in as Jury Comm. for court. On county insurance.
23 Medicare Prt A only.
24 No.
25 Yes
26 Nothing at this time.
27 YES!! Smoked for over 50 years and am not proud of it.
28 Yes.Do some of the exercises they taught in Rehab.Upper body & treadmill.etc.
29 I have had very good luck with "Z.Pac".
30 No.

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1. :  Cheryl Matela ,1954, female
2. :  Florida, c2mate@aol.com
3. :  Emphysema, Asthma
4. :  44
5. :  43
6. :  cough
7. :  yes
8. :  pulmonary function tests
9. :  Dr. Mitra, yes
10. : yes
11. : Combivent 4xday, Advair 2xday 100/50, nebulizer-Albuterol every 4 hours
12. : none
13. : Theo-24 300mg 2xday, Singular 10mg day
14. : none
15. : no
16. : no
17. : yes
18. : yes Albuterol every 4 hours
19. : yes 2 liters Constant
20. : can't handle heat
21. : no
22. : Was told I didnt make enough money in the past 10 years to quailify
23. : yes Avmed
24. : on waiting list for transplant
25. :
26. :
27. : former
28. : yes
29. : Zpac
30. : yes- negative

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1. :  Joseph A McCauley, 1943, male
2. :  NJ, josephamccauley@mac.com
3. :  Emphysema
4. :  50
5. :  45
6. :  I blew up like a balloon
7. :  yes
8. :  not sure
9. :  my pulmonary dr
10. : not sure
11. : combivent 4x per day
12. :
13. : theophylline
14. :
15. : no
16:  weight gain with steroids
17. : yes, treadmill, weights
18. : combo albuterol,ipratropium
19. : 3 liters 24/7
20:  no
21. : on disability
22. : full disability
23. : medicare/AARP-coverage is good
24. : talked about but decided against
25. : yes
26:  it's never too late to stop smoking and it helps
27. : yes, 45 yrs, 2 - 3 pks per day
28. : yes
29. :
30. : no

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1. Harrison McCawley  1923  male
2. Maryland (suburb of Washington, D.C.). hbmcc@erols.com
2a. No.
3. Emphysema
4. 76
5. About 74 - 75
6 and 7.
(Looking over the text below, I seem to have answered most of your remaining questions but not in their order. If this is unacceptable, please advise). For some years I had undergone attacks of bronchitis lasting for from one to three months. Considerable mucus formation requiring constant clearance by sharp exhalation of breath. This was noted by my GP in my
annual checkups, but since there was no noticeable SOB and chest x-ray was negative, I was usually given an antibiotic which seemed to work with the standard advice to give up smoking (which had been given by various doctors for the past 35-40 years). . Two years ago (1998) I began to notice some difficulty breathing. However, I rarely exercised, and assumed this was due to being out of shape.   I gradually reduced my cigarette consumption from a pack (of the ultra lights - I could not inhale regular cigarettes
without gagging) a day to about half that. However, I continued to smoke cigars (usually once a day after dinner - I rarely smoked cigarettes in the evening) and a pipe. My bronchitis cleared up about two years ago - no mucous, no coughing, not even the flu. In my latest checkup in June of 2000, my GP referred me to a pulmonary specialist (PS).  I immediately gave up the cigarettes. In September, I was diagnosed as having emphysema - borderline severe. Combivent brochodialator was prescribed (two puffs four times daily). I have ceased smoking altogether (last smoke was 8/11).  To be truthful, quitting smoking was not a big problem. In these circumstances, I figured I had had a lifetime ration of tobacco smoke. In addition, oxygen therapy was prescribed 24/7 at a flow of 1 lpm. If I am spared any other illnesses, I feel confident that I can arrange my life and lifestyle to accommodate LTOT. I am investigating portable concentrators, among other things.

    As stated, I will be 77 on 9/4/00. I am about 60 lbs overweight (at 5'11'' I weigh about 245 - and the weight has crept up since I ceased smoking). The PS provided me with an informative illustrated booklet on COPD. I searched the net for further information and found quite a bit. I have now read a number of articles about COPD focusing on emphysema and have learned quite a bit from these sources as have found the postings to the EFFORTS listserv enormously informative and interesting. I purchased an oximeter. When I am resting comfortably I get Sp02 readings from 93-95. I have led a very sedentary life for many years, but since my diagnosis have resolved to get some exercise daily. I can now walk for between 15 minutes without getting winded (providing the weather is not too humid, as it often is here in the summer) and resolve to improve this. I will now start to attack the weight problem. I feel much better than I did a month ago when many relatively minor physical tasks would leave me winded and
with a hammering heart. Since I ceased smoking, I feel stronger and am optimistic about coping with this condition. While I dearly loved the joys and comforts of tobacco, fully aware of the risks involved, I have resigned myself to abandoning them as the alternative to spending my final years in misery.  I have full confidence in my pulmonary doctor. He seems intelligent and willing to discuss my condition with me Just at present I have worries other than my E problem. I will not go into detail but this began when I had a small pinhead sized blackhead like growth on my ear lobe removed by a dermatologist late in September. A biopsy report was sent to a urologist whom I had consulted about my prostate (no problem there) who then informed me that I must get a CT
scan of my kidney. I followed directions and was then told that a lump had been revealed. However, an ultrasound exam revealed that this was only a benign cyst in the kidney, a common condition not requiring any treatment, thank Heaven. I can now get on with living with emphysema for which the EFFORTS group provides invaluable help.

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1. :  BARRY McCLINTOCK. 1943. M.
2. :  NORTHERN IRELAND wbmcclintock@tiscali.co.uk
3. :  EMPHYSEMA &CHRONIC BRONCHITIS
4. :  50
5. :  49
6. :  ANNUAL CHECK-UP
7. :  NO
8. :  X-RAY
9. :  G.P.
10. : NO
11. : SPIRIVA  18mcg per day;  SYMBICORT. 4 PUFFS PER DAY. VENTOLIN 2 PUFFS 4 TIMES A DAY.        
12. : VENTOLIN 
13. : PHYOCONTIN 900 mg PER DAY. SINGULAIR
14. : SINGULAIR
15. : NO
16. : VENTOLIN (PAPITATIONS)
17. : YES
18. : NO
19. : NO
20. : COLD
21. : RETIRED
22. : FULL
23. : NO
24. : NO
25. : ANYTIME
26. : NONE
27. : FORMER
28. : YES
29. : CIPROXIN OR KLARICIDE
30. : NO

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1. Sharon McCormick, 1936, Female.
2. Ohio, shm@core.com
2a. No
3. Emphysema
4. 65
5. 65
6. Trying to walk to lost weight, I got to sob.
7. no
8. spirometry
9. Pulminary lab at Kaiser Permanente, and no, I sure didn't!
10. yes, if you mean they had me on a bronchodilator for a while, and then do
some of the test again.
11. Combivent, 2 puffs 3X a day
12. none taken.
13. none
14. n/a
15. no
16. no
17. no, and no so far....
18. no
19. no
20. sometimes every muscle in my body just does not want to move.
21. no
22. no
23. have Kaiser Permanente through my husband's employment, no prescription coverage.
24. no
25. sure, but I don't know enough!
26. 
27. quit after 50 years, on June 12, 2001
28. I am trying to.
29. don't know
30. no

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1.  Bernice McCoy  1933 female
2.  CA  email:  bernicemcc@aol
3.  emphysema
4.  62
5.  62
6.  coughing spell that wouldn't quit.
7.  no
8.  none
9.  no
10. no
11. 3 puffs each, 3 times a day:  atrovent and azmacort
12  only take above
13.  none
14. --
15. no
16  having problems lately with very slow healing..anything to do with medication?
17. none
18. none
19. no
20. no
21. retired
22. no
23. HMO and medicare now
24. no
25. yes - please contact me by email
26. just discovered this site and am very interested. after reading some profiles, realize that there is more that can be done.
27. no not for three years...smoked heavily for 40 years, but after above racking coughing spell, never had another.
28. should exercise more, but think I can't do much--maybe this will inspire me
29. do not know
30. no.

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1. :  Beth McDonald, 1946, female
2. :  NY bethmcd1@catskill.net
3. :  emphysema, some chronic bronchitis
4. :  53
5. :  50?
6. :  wanted help in quitting smoking
7. :  about a year later
8. :  x-rays, PFTs
9. :  Respiratory therapist -- info from EFFORTS
10. : no
11. : Albuterol, 17 g., Atrovent, 14 grams - both as needed
12. : n/a
13. : 15 oral meds but none for COPD
14. : n/a
15. : Paxil extended release, 25 mgs.
16. :
17. : no    walking at least 3mph or faster
18. : yes --- only when needed for exacerbation
19. : no
20. : SOB in extreme heat or cold (and high humidity)...incontinent when SOB, confused when very SOB -- usually when trying to move as quickly as I used to
21. : no
22. : SSD appeal is pending
23. : no
24. : no
25. : Yes. Please email to set up time to phone.
26. : I have mild COPD, a surgically repaired hiatal hernia, a healed esophageal ulcer, and moderate coronary disease.  These conditions involve 3 different specialists and long debates about whose organ is causing the trouble -- incredibly complicated when lungs and heart and esophagus are all less than perfect.
27. : former smoker
28. : primarily walking on treadmill
29. : levaquain
30. : no

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1.  Stephen McDonald (Steve), 1956, Male
2. New York, STEVEMAC11@PRODIGY.NET
2a. No.
3.  Emphysema w/ Asthma & Chronic Bronchitis
4. Initially diagnosed with Chronic Bronchitis at 30, Emphysema at 42 (Acute Asthma attacks in between)
5. Emphysema - SOB at 40 (this was my period of self denial)
6. Emergency Room - stopped breathing
7. No. Only GP. Although under Pulmonologist\Pulmonary    Care in Hospital.
8. Cat Scan, X-Ray, Blood\Gas Work & Pulmonary Function Tests
9.  Pulmonologist & My GP. Yes.
10. Yes.
 11. - Serevent 2x2 daily
       - Azmacort 4x2 daily
       - Atrovent 2x4 daily
       - Albuterol as needed
12.  NA
13. Theodor 300mg 2x daily
14.  NA
15.  No.
16.  No.
17. Yes. Walking 3 to 4 miles a daily, plus physical exercize  - stomach crunches, sit ups, plus Yoga/Tai Chi (for Breathing Exercises).
18.  No.
19. No.
20. Sometimes Sleeplessness - have to watch the caffeine with the meds, too much coffee and I'd be up all night  Sleeplessness early on after diagnosis though,  primarily because of anxiety. Also, heat & humidity are  bad for me, sometimes I feel like someone is sitting on my chest.
21.  Yes. Full Time.
22.  NA.
23. Yes. At the moment, HMO Insurance is sufficient. However, if I retire... health care is a big concern.
24.  No. But, have had initial discussion with the GP about a Bulluectomy. GP suggested in a year or two.
25. Yes. Certainly, normally after 7 PM EST on the Internet. I am on the DIGEST, so I should be  e-mailed directly, if I'm needed right away.
26.  Good Attitude can take you a very long way! This disease is not the end all! The horse is out of the barn, but the door is far from shut! I am so glad I no longer smoke. And equally concerned to help others not to Start or to Stop.
27. Yes, Former Smoker.
     Yes. Quit Immediately at time of diagnosis (8 months smoke free so far.. I will never go back).
28.  Yes. Every Day 3 mile walks, physical & breathing exercises.
29.  Timentin
30.  Yes.But, no. My condition is because of smoking.

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1. :  Dermot McDowell 1944 male
2. :  Ireland dermot@last.org
3. :  Emphysema
4. :  59
5. :  59
6. :  SOB
7. :  yes
8. :  spirometry
9. :  Practice nurse -- NO!!
10. : No
11. : Qvax 100 ( steroid) + Airomir
12. : Combivent
13. : Pred - 20mg  Uniphyllin 200 +400mg
14. : N/A
15. : No
16. : Uniphyllin -- hand tremors
17. : None
18. : No
19. : No
20. : No
21. : No
22. : Yes
23. : N/A
24. : No
25. : Yes anytime by email
26. :
27. : Former
28. : Limited walking
29. : ??
30. : No

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1. :  Michael McGloin, 1950 Male
2. :  Ireland  michaelmcgloin@eircom.net  No
3. :  Chronic Bronchitis, Emphysema
4. :  47
5. :  43
6. :  SOB
7. :  Yes
8. :  P,F.T., X Ray, CT Scan, Blood tests
9. :  Hospital Consultant,                         Yes
10. : No
11. : 2 Puffs Seretide250  twice daily, 4 puffs Oxivent twice daily, Spiriva & Ventolin as reliver
12. : N/A
13. : Zephlin 300 twice daily, Accolate20mg twice daily, Rotating Antibiotics,20 mg prednisolone
14. : Accolate
15. : No
16. : No
17. : Yes, nearest Re-Hab Unit 160 miles
18. : Yes, Ventolin & Atrovent 500ml
19. : Yes, 2lr 24hrs.
20. : Yes, heat, cold, smells, sleeplessness
21. : No
22. : Yes Full disability
23. : No, Public Medicare
24. : Assessment for L.V.R.S. (failed) now been assessed for Stent or Transplant
25. : Yes   E-Mail
26. : N/A
27. : Former
28. : Exercise Bike
29. : Klacid 500mg
30. : No

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1. :  Nancy McHugh, 1930, female
2. :  North Carolina nancymchugh@yahoo.com
3. :  Emphysema
4. :  70
5. :  69-70
6. :  flu
7. :  No -- none available
8. :  X-rays, breathing
9. :  doctor, nurses, and yes
10. : no
11. : Spiriva and Advair
12. : Serevent
13. : none for emphysema
14. : ---
15. : no
Q16:  no
17. : no -- none available
18. : no
19. : 24 hours
Q20:  --
21. : no
22. : no
23. : yes
24. : no
25. : Email
Q26:  --
27. : yes
28. : yes
29. : haven't had any
30. : no

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1. James McKenzie, 1933, male
2. Utah, jcmcmd@aol.com
2a. No
3. Emphysema
4. Don't remember.  Around 60
5. Shortness of breath developed throughout the 1980s
6. Employers medical exam
7. Yes
8. Exhale peak flow, lung volume, blood oxygen, lung x-ray, etc.
9. Dr. Robert Farney, yes
10. No
11. Combivent and Azmacort
12. Don't know
13. Uniphyl, 600 mg at bedtime.  Presently also taking Prednisone on diminishing dose schedule plus APAP/HYDROC for cough and throat pain.
14. Don't know.
15. No
16. Uniphyl made me nauseas when I first started using it.  No problem now.
17. Yes.  Took rehab program at U of Utah hospital.  Treadmill, stationary bike, weight machines.
18. No
19. Yes.  3 l/min continuous.
20. Have trouble sleeping because of coughing.
21. No, am retired.
22. No
23. Have Medicare plus private supplemental
24. No
25. Yes.
26.
27. No.  Quit 3-4 pack habit in 1987.
28. Sometimes.  Have been sick the last 4-5 weeks and not exercised during this time.
29. None seem to help me much.
30. No

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1 Carroll w. McLaughlin   Male, 1932
2Medway,Maine carolsgunz @webtv.net
2a caregiver for wife with multiple sclerosis chronic progressive
diag.late 70s
3  self copd asthma emphysema scar tissue from inhaling sulfuric acid (1958)
4 36 when burned with acid
5  37
6   infections
7  not till 1980
8 abg  fev many others (6hours of tests,no breaks for lunch)
9 Dr. Christine Oliver  Mass Gen Hosp  pulm
10 weren't
11 inhalers albuteral  atrovent  intal  airobid flovent 110
12 intal
13accolate  lipitor dicyclomine  prilosec
14  theophylline
15 no
16 yes prednisone
17  no
18 yes nebulizer w/albuteral 0.083 andipratropium bromide 0.02
19  no
20  cold air bothers   sleepliness
21  no retired 1987 full retirement
22medicare and pvt ins carried from employment
23yes
24  no
25 internet anytime or snail mail  hcr86 box 2188  medway, maine. 04460
26  odors exhaust food frying  perfumes
27 former  45 yrs.
28 no only daily chores as possible
29  cipro 500 g  with prednisone  for 15 days   10 days won't do the job.
MY PROFILE TO USE AS YOU WISH WITHIN OUR EFFORTS FAMILY
Carroll McLaughlin (carolsgunz @ webtv.net)

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#1(giz)....james l mcmains  Born 1956  Male
#2 giz@nmia.com  new mexico  
#2a no 
#3 emphysema 
#4 40 yrs. old  
#5  40  
#6 my wife  
#7 yes
#8 breath in and out as fast as you can test and blood work from my wrist
#9 VA.hospital and i learned mostly from the internet  
#10 yes  
#11 albuteral 2 puffs 4 times a day or as needed  
#12 dont know  
#13 none but they are thinking of putting me on predisone  
#14 dont know 
#15 no 
#16 yes tremors on my inhaler 
#17 no  
#18 no  
#19 no  
#20 no  
#21 yes full time 
#22 no  
#23 no
#24  no  
#25 yes  
#26 hey iam to young  
#27 yes iam but been trying to quit but with no luck so far  
#28 yes  but have been slowing down alot lately
#29 none just bed rest but had some docs. get mad at me for not coming in .....stubborne you know .i never get sick till i see a doc. lol

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1. :  Jerry McVey 1943 male
2. :  Winamac In mcveyjer@yahoo.com
3. :  Emphysema
4. :  60 yrs old
5. :  60yrs old
6. :  went to theV.A. hosp. counded brethe
7. :  yes
8. :  chest xray & pulmonany
9. :  V.A. doctors, no i dont understand !
10. : no
11. : albuterol, flovent 220 mcg,combivent
12. :
13. :
14. :
15. : citalopram hyrobromide 40mg
16. :
17. :
18. :
19. :
20. :
21. : retiered
22. : full disability from broken neck in 1990!
23. : medicare & V.A.
24. : NO
25. : EMAIL OR PH.
26. :
27. : FORMER  53YRS
28. : WALK
29. :
30. : NO

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1. :  LONDA MEEKS,1961,FEMALE
2. :  MISSOURI,SINGLE44@kc.rr.com
3. :  COPD,EMPHYSEMA
4. :  42
5. :  41
6. :  ER TRIP,THOUGHT I WAS HAVING HEART ATTACK
7. :  YES
8. :  CT,FEV,BLOOD GAS
9. :  PULM DOCTOR,NO
10. : NO
11. : ADVAIR,ALBUTEROL
12. : ALBUREROL
13. : NONE
14. : NONE
15. : NONE YET
16:  BACK PROBLEMS,WEIGHT GAIN WITH STERIODS
17. : NONE
18. : NONE
19. : NONE
20:  INCONTINENCE,UP EVERY 4 HRS,CAN NOT BREATHE RIGHT
21. : YES,FULL TIME
22. : NO
23. : INS THRU LOWES,YES
24. : NO
25. : YES,EVENINGS
26:  I JUST WISH I COULD PLAY WITH GRANDKIDS,IT IS SO HARD TO DO
27. : FORMER,20YEARS
28. : NO
29. : BATRIM
30. : NO

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1.Dominick Mennuti 1923 male
2.new york dmennuti@aol.com(nick)
2a no
3. emphysema
4.1994
5. 1996
6. sob
7.yes
8.walking
9.pulmo dr.   no
10. no
11.Aarbuytrol serervent flovent   
12.all
13.prednisone  10 mg , lasix  20mg   aerosol and atrovent (neb) 4 tms  a day,
  sinular 10mg   volmax 4;mg (2)
    TRIANTERE,, (WATER PILL)   potassium
14. most
15.no
16 no
17.yes usual, treadmill etc
18 yes arbuyterol and altrovent
19yes 7/24
20. cold,
21. no
22. no
23.medicare an private  no
24.no
25. yes   all times    e mail  post  
26. i wont give up these daily postings for  no matter what they are serving for dinner
27.yes former
28yes
29.
30. no

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1.Tom Menzel-Male-1932
2.MN- TommR11@aol.com
3.Chronic Bronchitis,Emphysema
4.50
5.49
6. Work performance slowed down and wheezing in chest
7.Refered to one after family DR thought there was a problem
8.Spirometer, X-rays and evaluation
9.Pulmonologist, yes it was explained to my satisfaction
10.No
11.FloVent-2puffs twice daily. Combivent-2puffs 6 hours. Albuterol as needed.
12. Seravent.
13.No Oral at this  time
14.Theodure for Oral and Seravent for Inhaler
15.No
16.Seravent made me short of breath. Theodur seemed to give me Flank pain.
17.Went thru Rehab in l982 when first diaganosed. Basic stretching exercises
18.Yes, Use Albuterol and Ipratropium
19.yes, Average of 4-8 Hours daily depending on what I am doing
20.Cold temps are harder to take.  Shoulders and Neck stiffness
21 No
22 I was on partial Disability pay from l982 till 1994 then Social Security and State Retirement Plan when 62 years of age
23.Medicare and private supplemental. No, have no drug coverage so must pay for all inhalers  out of pocket.
24.No
25.Yes. Any  time.
26.The Medical Profession seems not to listen to the individual or honor many requests. I think Effforts will someday help turn the tide of apathy.
27.Yes. 35 years Started in Service with C Ration free cigarettes during Korean War
28. walking and stretching, but run out of  gas easily.
29.Amoxicillin
30 No

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1. :  Burt Messenger, 1938, male
2. :  California burtm@pacbell.net
3. :  Emphysema
4. :  61
5. :  around 55
6. :  Got the flu and ended up in the hospital.
7. :  yes
8. :  Breath volume, CT
9. :  Pulminologists over saw, yes I got good description
10. : no
11. : Spirivia 1 capsule
12. : Advair
13. : 303.693 Actonel 35mg once weekly
14. : don't know
15. : Wellbrutrin 150 mg, Ativan 1 mg
16:  Ameoderone Peripheral neuropathy right now am suffering from water retention don't know why
17. : none
18. : Xeopenex
19. : yes 2 liters as needed
20:  hot & cold yes
21. : no
22. : full
23. : both private & medicare
24. : no, had all the tests but was not chasen as a good candidate
25. : yes, 9:30am to 4:30pm PST mon thru Fri by phone 831-422-3721
26: 
27. : former
28. : no
29. : zithromax
30. : no

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1.  Richard A. Michal (Dick)-1937-male
2.  Cedar Rapids, Iowa
RAMsez@webtv.net or                              ramichal@webtv.net
3.  Emphysema w/ Diabetes ll
4.  57
5.  54-55
6.  Shortness of breath , blackouts,  swollen/sore ankles
7.  After monthly family Dr. visits with no improvement
8.  week hospital stay w/ EKG,CATSCAN, Xrays,blood tests
9.  Pulmonary doctor referred by family Dr. during hospital stay dd quite well
10. well monitored during week stay
11. Albuterol 3 puffs  x 4 times daily
     Atrovent 2 puffs   x 4 times daily
     Aerobid-M 2 puffs x 2 times daily
12. No others taken previously
13. Theophylline 200mg.-2 twice daily
      Zaroxolyn 2.4mg-      2   "        "
      Furosomide 40mg     2   "        "
      Spironolactone 25mg 2  "        "
      PotassiumCl.  10meq 4 4 times "
      Amaryl 2mg             1.5 daily
14. Dosages adjustd er regular blood tests
15. No anti-drepressants or tranquilizes
16. Close monitoring seems to work-
      Predisone taken 1 week and dropped
17. Walk and light exercise as possibie-air bike newly added
18. No nebulizers as long as i can do inhalers easily
19. 02 concentrator @ 1.5 - 2 LPM when active or sleeping.
DeVilbiss PulseDose for mobility
20. Problems with cold, smoky, dusty or unmoving air.Only sleep 1 1/2 at a time, off and on all day and night-fluid retention in ankles & feet-
21. No employment since diagnosis
22. Full disability since fist COPD  diagnosis 4 years ago
23. Medicare only-Rxs are budget-busters       Apria HealthCare have been very accommodating with equipment and services

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#1 Marlene Miles 1940 Female
#2 Florida, easymiles@gbso.net
#2a William Miles-Husband.
#3 Emphysema.
#4 -55 years.
#5 age 55.
#6Pain in chest and hard to breath.
#7 Went to pulmonologist first.
#8pulse oximiter, then put in hospital where they did a cardio cath and catscan.
#9 Dr. Herman Levy in Brunswick, Georgia and  yes he explained it very well.
# 10- No
# 11- Azmacort 4 times a day if not at home, combivent as needed to ease breathing,
nebulizer at home 4 times a day.
# 12- proventil.
# 13- cardizem cd 180 mg cap-once daily,
# 14 proventil.
# 15- Elavil 25 mg-1 tab at bedtime.
# 16- no.
# 17-Yes, pulminary rehab.
# 18- yes, Albuterol Sulfate 2.5mg mixed with Ipratropium Bromide0.02%.
# 19- 24 hours a day-constant.
#20- Intolerance to both heat & cold.
# 21- No.
# 22- Full disability.
# 23- Medicare and yes it is insufficient
# 24- Was evaluated for lung transplant and was aproved but will not be listed until
i build up my strenght in 8 weeks of rehab.
#25-  Yes.
#26- None
# 27- Former smoker but quit 3 years before becoming ill.
# 28- Yes, mon, wed, fri at rehab, and walking at home in between.
# 29- Levaquin 500mg tab.
# 30-  Yes

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1. :  Diana Miller 1937 female
2. :  bakavi.knl@verizon.net
3. :  emphysema
4. :  48??there abouts
5. :  ??
6. :  shortness of breath
7. :  eventually
8. :  routine pulmo tests???
9. :  No, I did not receive enough info.
10. : No
11. : Combivent.  every 4 hrs as I deem necessary.
12. : None other
13. : Nothing for COPD
14. : NA
15. : No, but  probably more wine than I should.
16. : Reactions to everything.  Especially Tylenol??
17. : No, found pulmo rehab on my own.
18. : No
19. : NO
20. : Can't handle the heat and humidity.  Incontinence and URI are a big prob.  Sometimes sleeplessness.
21. : part time
22. : No
23. : sort of.  Not sufficient
24. : No
25. : Sure, I have no secrets concerning this freaking disease!!i
26. :
27. : Smoked for 40 stinking years.  Sooo hooked on nicotine.  Tried everything finally went to drug rehab.  Have bee clean about 8 yrs.
28. : some, not enough
29. : Never took any.
30. : NO

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1. :  Diana G. Miller 1943 Fe
2. :  Idaho go2redrock@aol.com
3. :  Emphyseme
4. :  63
5. :  I don't know, I am the Queen of Denial
6. :  I moved from Texas to Idaho where my two daughters live, one a Nurse Practitioner noted my SOB.
7. :  Daughter (FNP) got me an appointment
8. :  Lung Function Testing.  6 Minute Walk.
9. :  Respitory Therapist.  Pulmonologist.  Yes I received information and then went to the Internet.
10. : Yes.
11. : Combivent.  Qvar.
12. : These are the only ones I have taken and they seem effective.
13. : None that relate to lung disease.
14. : None that relate to lung disease.
15. : None.
16:  None.
17. : Yes.  Respitory Rehab.  Upper Body.  Treadmill and Stationery Bike.
18. : None.
19. : LIquid 02 at 2 for sleep and exertion.
20:  Some nights sleeplessness other night not.
21. : Looking for Full Time Work
22. : No
23. : Private.  Coverage still leaves me with a lot of bills.
24. : No.
25. : e mail.
26:  This support Group and my COPD support Group has saved my life!
27. : Former Smoker.  Quit 10 years ago.
28. : Yes
29. : I was Dxed in June.  I haven't had any infections for the past 5-6 months.
30. : Yes.  SZ

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1. :  joan miller,1921,female
2. :  ca, ernie2@aol.com
3. :  emphysema
4. :  79
5. :  75
6. :  fatigue
7. :  yes
8. :  breathing evaluation,x-ray
9. :  technician
10. : yes
11. : advair/250, night oxygen
12. : all have helped
13. : inhaled advair/250
14. : none
15. : no
16:  no
17. : twice weekly 1 1/2 hr exercise+lecture
18. : prior to advair250-ipratropium+albuterol
19. : night oxygen
20:  no
21. : no
22. :
23. : hmo - sufficient
24. : no
25. : yes - 3:00 - 5:00Pm pdt
26:
27. : yes
28. : i play tennis (doubles) 5 times a week
29. : I don't remember
30. :

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1. :  Monte Miller, 1953, male
2. :  Arkansas, arkie_1953@direcway.com
3. :  Emphysema
4. :  50
5. :  40's
6. :  Pneumonia
7. :  yes
8. :  lung capacity, blood oxygen, x-rays
9. :  family MD and pulmonologist, no
10. : no
11. : proventil FHA - 2 puffs 4 times a day, advair - twice a day, spiriva - once a day
12. : unknown
13. : Prednisone 20mg
14. : unknown
15. : no
16:  no
17. : no
18. : no
19. : no
20:  cold somewhat
21. : full-time
22. : no
23. : yes, yes
24. : no
25. : yes
26: 
27. : yes
28. : no
29. : don't really know
30. : no

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1)Sandra Miller* 12-21-43 Female
2) 726 Cambridge Yo. Ohio 44502-2521
    mattsgrammy@webtv,net
3)Emphysema
4) 52 yrs old
5) 50 yrs old
6) Kept getting Bronchitis alot of dry coughing.
7) I was refered to a Pulmonologist.
8) I had a chest x-ray and  a spiro-meter I didn't have health insurance so he chose not to do any more tests.
9) My lung doctor directed my first tests and I don't feel he stressed the seriousness of this disease.
10) No, I was on Albuterol at the time I went to the LUng doctor I can't remember if I was taking any other medication it was a few years ago.
11)  Albutero, Flovent,and Atrovent
12) Serevent made me sick and after 2 years Aerobid quit helping me and was nauseating me. In the beginning the Uniphyl was making me sick, so they cut my dosage down from one whole one twice a day so they cut the dosage in half and I began taking half a pill twice a dy and I was no longer sick.
13) Atrovent Nebulizer or puffer 2 puffs every 6hrs
       Albuterol Nebulizer or puffer  2 puffs every 2 to 3 hrs as needed
        Cardizem CD 120mg 1 time a day
          Flovent 2 puffs 2 x's a day
      Guifed 250mg 2 x's a day
      Ibuprofen 600mg every 6hrs as needed for pain.
       Pepcid 20mg 1 tablet 2x's  day
       Rocaltral 0.25 mg 1 tablet once a day
        Theophyllene 200mg 1 ablet 2x's a day
        Vitamin E 400mg 1 time a day
         Prednison 5mg once a day (now)
14)  Uniphyl
15) No, I took Lorazepam 0.5 for a few days and my daughter told me to get off of it I had no expression or emotions.
16) No, I had a little trouble with Unyphil at first  it was too strong but once we cut the dosage down it's been fine. Maybe we could say that the Pednison has caused me some problems I have degenerative arthiritis in my shoulder and cateracts in both of my eyes and they are all caused from steroid.
17) I tried therapy 2 years ago, ended up worse for it and was hospitalized, I tried again this past spring unfortunatIy  ended up nthe
hospital again. So I try to keep  myseff busy around the house walking  and doing the little bit of arm exercises that I can.
18) Yes, I use a nebulizer an Invacare-Enoy I use Atrovent and Albuterol.
19) I use OX 24-7 at 2 liters.
20) I have trouble with heat I can take the cold better. My room is usually freezing with muliple fans going to circulate the air
I usd to have sleeplessness until I started using m bi-pap. 21)  I had to give up my part time job last year; it involved too much
walking and getting in and out of my car.
22) I am on full disability and have ben for 3 years now but I was allowed my little part time job .
23)  I have Medicare and Medicaid so far everything has been paid for but I don't know how I would manage if I didn't have the Medicaide.
24)  I am in the NETT program for Lung reduction and also on the list for a Transplant.
25) I can always be reached at this E-mail adress.
26) I am up and down so much... I just hate losing my independance .
27)I wonder about the doctors,,,the pulmonologist at University of Pitt. said that I wasn't a good candidate but the surgeon seems to think that I would be perfect???? Hmmmm which one is right my moneys on the surgeon ;}
28)  No, recently I havn't been going to Re-hab between my arm and the nfections going around I just havn't went but once I finish my testing in pitts. I' m gonna have to go for 6 weks straight.
29) I'm not having much luck with anti-biotics it seems I take one for a week then I' OK but a week later I need another one , and since I'm a pink puffer I can't cough anything up so it just sits down there and keeps infecting me.  I just wish there was something out there that they could give me to actually get rid of the infection instead of just covering it up for a week.

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1. :  Karen Milton, 1965, f
2. :  British Columbia, Canada  lu_cid2004@hotmail.com
3. :  emphysema
4. :  39
5. :  not sure
6. :  lung collapsed
7. :  nope
8. :  x-ray, ct scan, blood test
9. :  respirologist
10. : yes and I don't take any
11. : none
12. : n/a
13. : n/a
14. : n/a
15. : no
16:  n/a
17. : no, I am very active anyways
18. : no
19. : no
20:  back and chest pains
21. : full time
22. : no
23. : yes and yes
24. : right lung bullectomy etc
25. : sure, e-mail anytime, on the net 3-4 times a week
26:  this really sucks
27. : smoked for 26 yrs. quit after diagnosis
28. : yes vaguely
29. : n/a
30. : yes, it was neg.

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1. :  Paul Mitchell, 1934, male
2. :  Michigan,paul_mitchell2@excite.com  Val wife
3. :  Asthma, emphysema, pulmonary fibrosis
4. :  67
5. :  66
6. :  lung cancer - small cell (inoperable)
7. :  yes
8. :  PFT, chest X-ray, blood work
9. :  Pulmonologist, yes
10. : no
11. : Albuterol .08% and Ipatroprium 2.5ML in a nebulizer four (4) times a day and Advair discus twice a day.
12. : Combivent
13. : Singulair 25 MG
14. : Theophylline
15. : no
16. : None, really
17. : Pulmonary re-hab at the local hospital.  Most exercises were to build stamina.
18. : See #11 above
19. : Yes  6 liters at rest, 15 liters with a venti-mask with activity; partial non-rebreather mask when in real trouble.
20. : Paul has trouble staying asleep at night.  We tried Ambien (10mg), but he seems to sleep too deeply, and awakens with a terrible, deep, hacking cough in the middle of the night. 
21. : Paul is retires, I'm staying home to care for him full time
22. : no - all of this started after he retired.
23. : BCBS PPO and Medicare. Is there ever enough insurance?
24. : Can't - he's too old, and he would need a heart & lung transplant now.
25. : Yes.  E-mail is best.
26. : The worst thing is thinking about the end.  We're not ready, but we know it's coming faster than we thought it would.
27. : Former
28. : yes - as he can
29. : Zithromax
30. : no

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1. :  Jane Moes   1942   female
2. :  Texas     texaslady@charter.net
3. :  emphysema
4. :  61
5. :  61
6. :  sob
7. :  no
8. :  pft
9. :  primary and no  think i should be referred to lung doc
10. : no
11. : advair 250  ==atrovent  14.7== rescue is albuterol 17grams
12. :
13. : none
14. :
15. : paxil
16. : no
17. : no
18. :
19. : no
20. : sleeplessness
21. : retired
22. : no
23. : prime tricare
24. : no
25. : yes  any time
26. :
27. : yes   3 or 4 a day
28. : yes
29. :
30. : no

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1. :  Jean Moessner 1936 Female
2. :  Arizona JMoe1236@aol.com  no
3. :  Asthma, chronic bronchitis, empysma
4. :  64
5. :  55
6. :  sob went to ER - 6 days in hospital came home with O2
7. :  Yes
8. :  PFT- Chest Xray - Spirometry
9. :  Hospital tech - no
10. : No, it was kind of hit or miss
11. : F;lovent -Foradil -Spiriva -Albuterol as needed
12. : Advair
13. : Dilacor 240mg - Prevacid 30mg- Singulair 10mg-Actonel 35mg
14. : Tried so many don't remember
15. : No
16:  No - allergic to penicillin rash and sob
17. : treadmill - weights
18. : Yes  Xopenex 1.25
19. : Yes  24/7
20:  sleeplessness
21. : No
22. : No
23. : Medicare/AARP  yes
24. : No
25. : Yes
26:  When I came home from the hospital I had no what was wrong with me. The E word was never spoken.  I had a Pulmonary Dr that was more interested in his golf game than in educating me on how to keep my self well,  It if wasn't for EFFORTS I would never have know there was such a thing as Pulmonary rehab.  When I asked him about it his answer was I would be bored out of my mind.  Needless to say, I looked for a new Dr.
27. :  Yes- former quit in 1995
28. : Yes - treadmill 30 min day
29. : Levaquin
30. : No

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1. Michael D. Mohs Dec 31,1937 male
2. mikar@redwing.net
2a. no
3. chronic bronchitis,emphysema Alpa-1
4. 55
5. 51
6. woke up could not catch breath,wife took me to ER,have been with same Dr. for nine years
7. no
8. nine years ago do not remember
9. Dr.Freiberg
10.
11. combiventas needed, advair 1/ =2day,neb combivent 2xday
12. azmacort,maxair,plumcort serevent
13. paxil, prilosec
14. see above
15. paxil 20mg
16. none
17. yes
18. yes cmbivent 2xday
19. yes 2L sleep 3L active use helious
20. heat humid
21. part time owner of remodeling company
22. no
23. yes private ins
24. am taking tests to see about lung transplant
25. evenings
26.
27. 40 years pipe smoker last 25 years have not smoked for 10 1/2 years
28. yes
29.
30. yes and do have Alpha1 mz =58

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1. :  Daniel E Molden - 1928
2. :  I am the patient.  Live in Plant City FL.  Email: dmolden@tampabay.rr.com
3. :  I am told I have Chronic Asthma,  Chronic Bronchitis, Emphysema
4. :  71
5. :  67.........I think.  Though I had been told at around age 50 that my lungs showed some signs of Emphysema.
6. :  Asthma attach
7. :  Yes
8. :  Chest Xrays - Breathing test on machine.  Was told I had only 20% of my lung capacity left.
9. :  Trained breathing nurse
10. : Yes - several times
11. : Albuterol - 2 puffs- 3 times a day, as needed
12. : Albutrerol....      ((Best Combivent))
13. : Theo - 200mg - twice daily.  Advair 250/50 - 2 times daily
14. : Have been few changes in my medications.
15. : No
16. : None
17. : No
18. : Albuterol...      Also using Spiriva
19. : 2 litters...24/7

21. : Retired
22. : Full
23. : Medicare & TriCare for Life....... YES
24. : No
25. : Yes I am available
26. : I know my condition is poor.  I don't dwell on it.  I live each day to the fullest (that I can).
27. : Former
28. : Only a little
29. : Don't know...have no experience
30. : No

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1. George Mondoux,1928,Male
2.Washington, geodoux@yahoo.com
2a. No
3.Emphysema
4. 69
5. 64
6. SOB No energy
7. Yes after 3 doctors over 5 years, Misdiagnosed and treated for cardiac problems for several years before  getting with a understanding doctor.
8. PFT, exercise oximetry and ABG
9. Pul Doctor- No I was not advised of anything . Found out my prescription from Oxy delivery person and most everything else through on line contacts and later on through RT at pulmonary Re-Hab.
10. No
11. Combivent-Use only as an emergency if I miss a nebulizer treatment
12. I have used Albuterol and Combivent. Found I was not getting much good from ether. I have had much better results from nebulizer treatment.
13. COPD-Theophylline (Slo-Bid) 300 Mg pr day.  Other conditions; Norvasc 10 mg per day, Potassium Chloride 20 mg per day, Zorcor 10 mg per day,Fosamax 10 mg per day, Testosterne 2ML Injections 1 per mo, Dyazide 25/50 1 cap per day, Aspirin 81 mg 1 per day, Calcium W/Vit D 1000Mg per day
14. No record
15.No
16.No
17.Yes, at Hospital facility-Treadmill, Bike and Arm
18. Yes, Albuterol 2.5mg/Ipratropium 0.5mg(CMP) 4 times per day
19. Yes 2LPM at rest and sleeping, 3 to 4 LPM while active
20. No
21.No
22. No
23. Medicare/Tricare for Life,
24. No
25. Yes Anytime via my E-Mail
26. I have put a lot of effort in trying to learn as much as I can about my illness.  It has not been easy with very non-communicating doctors.  I owe a lot to the dedicated RT's I have met through the Re-Hab program and continuing Re-Hab maintenance.
27.Former- Have been a non-smoker for the past 12 years after a very active 45 year habit.
28. Yes , mostly with my Re-Hab maintenance classes 2 times a week.
29. Doxycyline
30. No

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1. :  Tamara Moody, 1955, F
2. :  Oregon, catdogtamara@yahoo.com
3. :  Chronic Emphysema
4. :  49
5. :  47
6. :  SOB
7. :  yes
8. :  x-ray
9. :  pcp,no
10. : no
11. : advar, combivent
12. : qvar
13. : none
14. : n/a
15. : no
16:  combivent, heart racing
17. : no
18. : no
19. : no
20:  sleeplessness
21. : full time
22. : n/a
23. : HMO/ just started to be treated no basis
24. : no
25. : yes, email will respond when I can, I work swing
26:  I try not to get depressed about any of this
27. : never
28. : what I get from working, manufact. lead
29. : levaquin
30. : yes

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1.    Bill Moore,1951,male
2.    Wisconsin, billm@busynet.net
3.    emphysema
4.    46
5    40
6.    wife nagging
7.    yes
8.    pft's, ct scans, and whatever else they decided to do
9.    hospital staff did tests, no
10.  no
11.  albuterol, azmacort, flovent
12.  not sure
13.  singulair
14.  not known
15  paxil  40 mgs  doctors want me to try 60mg
16  none
17  yes, pulmonary rehab but could not go
18. yes, proneb, use albeutrol
19.  24/7 3lpm to 5lpm compressed, at night use concentrator
20. cannot sleep well, cannot handle cold or heat
21. not employed
22. full disability
23. yes private insurance..very good policy
24.  not on list for dual lungs as of yet
25. Anyone can ask me anything they want whenever they want.  I will be happy  to give phone numbers
26.
27. smoked for 35 years, gave it up about a month ago
28. very hard to exercise due to cold weather.
29.  Doctors have given me so many I do not remember names but I can look
them up.
30.  tests for Alpha but does not apply

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1. :  Casey Moore 1957  F
2. :  Wa.  casey98465@att.net  no
3. :  Emphysema
4. :  47 yo
5. :  47 yo
6. :  Getting out of wind easily.
7. :  No
8. :  X-rays
9. :  My regular doctor,I guess so.
10. : No
11. : albuterol
12. : I only take albuterol.
13. : 0
14. : n/a
15. : I take sinnequan 75 m.g
16:  I once took a medicine called zantac and had a bad re-action to it.
17. : no,I just stopped taking them by doctors order.
18. : no
19. : no
20:  insomnia and depression
21. : Yes , part time
22. : none yet
23. : I have no insurance.except workers comp.
24. : no
25. : yes,mornings,email
26:  I am going to try and file for social security disability.
27. : yes
28. : i get all breathless when I try and walk to far.
29. : ?
30. : no

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1.Patrick J Moore*, 1936, male
2.Oh, pmoorebigdaddy@aol.co, 330-797-1756, no to caregiver
3. C/b, emphysema
4.60
5. 56
6. Thought I had pneumonia
7. yes
8. The whole battery
9. PT directed and yes I understood
10. no
11. Foradil 12mcg ipuff 2 times daily, nebulizer combo 4 times daily, Flovent
220 4X2
12. Advair, theo
13. Lanoxin .375, Claritin 10mg
14. n/a
15. No
16. Advair & theo, no effects
17. yes treadmill, bike, armicizer, weights
18. yes, albuterol & iprotpium mix 4 times daily
19. yes 24/7 4L at rest 6L at exercise
20. Extreme heat or cold
21. Retired
22. Not now, was on full disability until 65
23. Anthem Senior, insufficient
24. had LVRS 11/13/2000
25. Sure, anytime
26. Have been told I am in end-stage
27. no, quit St. Patrick's Day, Mar. 17, 1999
28. yes treadmill, weights and calisthenics
29. Quinilones, (Cipro, etc.)
30. Don't know but don't think it applies

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1. :  Maggie Moran,1943,female
2. :  Illinois,fyrebird752002@yahoo.com
3. :  Asthma,Chronic Bronchitis
4. :  58
5. :  58
6. :  Breast Cancer
7. :  no
8. :  pft
9. :  nurse
10. : not sure
11. : Advair 250/50
12. : n/a
13. : singular,theophaline
14. : n/a
15. : no
16:  double theophaline made me nauseus
17. : no,no
18. : occasionally,albutural
19. : no
20:  cold,humidity
21. : no
22. : full
23. : medicare
24. : no
25. : yes,email
26:
27. : yes
28. : yes
29. : n/a
30. : yes

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1. :  Brenda Morgan/1955/female
2. :  Florida  /  Brendam62955@aol.com
3. :  Emphysema
4. :  47
5. :  As I think back.......about  42
6. :  shortness of breath , taken to ER
7. :  Yes,in hospital.
8. :  PFT....blood tests....x rays
9. :  pulmonologist.....yes
10. : no
11. : advair 100/50  2xdaily ....combivent
12. : n/a
13. : Diovan 80mg 1xdaily//potassium /Lasix40mg 2xdaily//
14. : n/a
15. : yes / zoloft 50mg 1xdaily
16. : no
17. : no facility in area....exercise as tolerated as often as possible
18. : yes,,albuterol
19. : yes, on  o2  24/7  at  1.1/2  ltr
20. : Heat and humidity keep me  inside during daytime as it feels ike i cannot breathe. Also have a major problem with sleeping.
21. : no...had to quit in Sept 2002
22. : appealing SSD
23. : no
24. : no
25. : e mail  or can personally e mail for phone number
26. : This is a very depressing disease, and I am a loner. This group has been a actual life saver for me. I dont post much,but I read all letters and have learned so much.  Thank You
27. : Former
28. : yes
29. : Leviquin
30. : no

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1. :  Lorraine Morgan, 1939, Female
2. :  Florida, jplm9961@aol.com
3. :  Emphysema
4. :  2000
5. :  2000
6. :  Following surgery
7. :  Yes
8. :  Unknown.  Disvovered while on life support
9. :  Several doctors
10. : No
11. : Combivent.  Nebulizer - Ipatropium and albuterol
12. : Neither
13. : Digoxin, Paxil, Lopressor and Lipitor
14. : none
15. : paxil
16. : No
17. : No
18. : Yes.  Albuterol and Ipratropium
19. : No
20. : No
21. : Retired
22. : 100% disabled, according to the doctor.
23. : Private Insurance, Tricare and Medicare.  Yes.
24. : No
25. : Yes.
26. : I have enjoyed this site tremendously since I first found it.My pulmologist says that I have a very mild case of emphysema.  My FEV1 is 98%.  As a result, I do not feel or act as if I am disabled.  I am capable of doing everything that I did before being diagnosed.
27. : Former.  When you are on life support for four months, you somehow don't need a cigarette.
28. : Yes
29. : I really haven't have an infection.
30. : No

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1. Lynde Morgan 1947 Female
2. Iowa  Angelwings4333@webtv.net
3. Emphysema
4. 43
5. 40
6. SOB
7. yes
8. ABG, PFT, chest xray
9. Pulmonologist  yes
10. no
11. serevent 2puffs 2xday, Flovent 220 2 puffs 2xday, albuterol as needed
12. combivent
13. none
15. no
16. no
17. yes  treadmill, stationary bike, weights
18. no
19. no
20. Intolerance to heat incontinence
21. parttime
22. Full
23. Medicare
24. LVRS 7/96
25. yes
27. former
28. yes 5x weekly
30. yes

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1. :  Kevin Morrissey, 1958, Male
2. :  United Kingdom, London, k.morrissey22@btinternet.com
3. :  Emphysema, Fibroses, D.I.P ?
4. :  45
5. :  43
6. :  Bleeding from the lungs.
7. :  No
8. :  C.T scan, Lung function tests, Broncoscopy
9. :  Professor at Royal Brompton, London, Yes
10. : Not on any medicines yet early days
11. : None
12. :
13. :
14. :
15. : None
16. :
17. : No
18. : No
19. : No
20. :
21. : employed, Full time
22. : No
23. : No
24. : No
25. : Yes
26. :
27. : Yes
28. : No
29. :
30. : No

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1.  Billy G. Moser, 1935, M
2.  CA moser@oro.net
2a.  No
3.  Emphysema
4.  64
5.  57
6.   Routine physical
7.  No
8.   PFT
9.  Local hospital, not sufficient info
10.  Yes
11.  Atrovent, 2 puffs 4 times per day
12. N/a
13.   Diabetes and blood pressure meds
14. N/a
 15.  No
16. No
17. No
18. No
19. Yes 24/7 at 2Lpm; 6Lpm with exercise
20.  Sleep poorly
21.  No
22. No
23. Medicare and Medigap;  Prescription drug coverage sucks!
24. No
25.  Yes, available.
26.   I could write a book about p--- p--- medical care in the U.S.
27.  Former smoker
28.  Yes
29.  Augmintin
30.  No

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1. :  ANITA MOTLEY 1946 FEMALE
2. :  ARIZONA nita@browntank.com
3. :  EMPHYSEMA
4. :  55
5. :  55
6. :  PANIC ATTACK
7. :  YES/BY THE HOSPITAL
8. :  PULMONARY FUNCTION TESTS
9. :  THE HOSPITAL TECHS/NO
10. : NO
11. : NONE
12. :
13. : THEOPHYLENE 400/FORADIL 12mcg,SPIRIVA, PREDNISONE 12MG
14. : THE ONES I AM TAKING NOW ARE THE ONLY ONES I HAVE TAKEN & THEY SEEM
TO BE HELPING
15. : YES, I JUST STARTED, PAXIL 20 MG
16:  ADVAIR/GAVE ME THRUSH
17. : AFTER I ASKED THE DR./ EXERCISE AS I FELT COMFORTABLE
18. : ON OCCASION/XOPENEX
19. : YES USUALLY AT NIGHT FOR A LITTLE WHILE WHEN I FIRST GO TO SLEEP AND I MAY OR MAY NOT USE IT ALL NIGHT.
20:  HEAT IS REALLY BAD, WORSE THAN COLD BUT I LIVE IN PHOENIX, AZ AND IT DOESN'T GET REAL COLD HERE.  IF I GET OVERWHELMED (PANICKY) I FEEL LIKE I COULD WET MY PANTS.  I HAVEN'T YET BUT THIS QUESTION SOUNDS ENCOURAGING (LIKE I HAVE SOMETHING TO LOOK FORWARD TO) I SLEEP MORE THAN I DID BEFORE AND I DON'T HAVE ANY STRENGTH IN MY BODY TO DO MY HOUSEWORK (MOP,
VACUUM, ETC.) TOO MUCH NOISE BOTHERS ME (LARGE FAMILY GATHERINGS WITH THE GRANDKIDS SCREAMING, LAUGHING, RUNNING, HAVING FUN, THINGS I USED TO ENJOY, NOW THE HUBBUB BOTHERS ME)
21. : FULL TIME
22. : PARTIALLY DISABLED, I USE A WALKER BECAUSE I DON'T HAVE STRENGTH IN MY BODY TO WALK ACROSS THE STREET.  SOMETIMES I HAVE TO USE OXYGEN WHEN I AM OUT IF THE HUMIDITY IS UP
23. : PRIVATE INSURANCE/NO IT ISN'T ENOUGH NOR IS IT VERY GOOD BUT MY EMPLOYER OFFERS THIS AND I WON'T BE ABLE TO GET ANY ON MY OWN
24. : NO
25. : AS IN QUESTION #2
26:  THIS GETTING OLD IS FOR THE BIRDS.  I OFTEN SAY "THEY SHOOT HORSES DON'T THEY?"
27. : FORMER
28. : AS MUCH AS I CAN/BUT NOT ENOUGH IF I GET THROUGH A DAY AT THE OFFICE I CONSIDER MYSELF LUCKY.
29. : LEVIQUIN
30. : NO

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1.      Ed  Motter*  born 1939  M
2.      Michigan     BussyLyn@aol.com
2A     Lyn, born 1959,  is caregiver for husband Ed
3.      Emphysema and Cor Pulmonale
4.      1994
5.      55
6.      SOB
7.      No
8.      Nothing until June 1998.  Dr. just kept saying "you may have a touch of
         emphysema, but just quit smoking and you'll be fine."
9.      See #8
10.     No
11.     No inhalers now, was on beclovent
13.     Theophylline, Zestril, Synthroid, Zantac, Bactrim, Bentyl, Lasic,
          Xanax
15.     Xanax - .5 mg.
16.     No
17.     Yes - during hospital stay in June 1998 but later said not a
          candidate for rehab because he was too bad
18.     Yes - Atrovent and Albuterol
19.     Yes - 5 liters, 24/7
20.     Intolerance to heat.  Catherized - unable to urinate on own.
21.     Retired
22.     Have not applied for SS disability yet
23.     Private insurance - adequate coverage
24.     No
25.     Yes - anytime
27.     Former smoker
28.     No - bedridden
29.     haven't taken any - except now am on Bactrim for bladder

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1. Frank Moyer*
2. Pa.     Pa-Kraut@webtv.net
2a. No 3. Emphysema
4. 56
5. 53
6. SOB and weight loss
7. Yes
8. X-ray, Spirometer, Oximeter
9. Dr.  Yes
10. No
11. Atrovent, Flovent, Combivent, MaxAir
12. -
13. None
14.-
15. Occasionally
16. No
17. No
18. Yes Albuterol
19. Twice daily
20. Cold and steam
21. No
22. Full
23. None
24. No
25. Yes
26. -
27. Yes
28. Very little
29. -

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1.  HERMAN  JOE (JOSEPH) MRSNY, 1935, MALE
2. NEBRASKA, HMRSNY@STANTON.NET
2.A.  NO, MY WIFE IS CAREGIVER
3. PREDOMINANT EMPHYSEMA, WITH SOME ASTHMA AND CHRONIC BRONCHITIS    
4. 51  IN YEAR 1986
5. SAME AGE 51
6. COULD NOT GET ANY AIR, WAS ALMOST COMPLETELY SHUT DOWN
7. REFERRED TO DR. AT SPOHN HOSPITAL, KINGSVILLE TX, THEN DR'S AT CORPUS CHRISTI, TX
    MOVED TO NEBRASKA, TO GET OUT OF HUMIDITY IN SOUTH TEXAS. SAW DRS AT OMAHA/ CLARKSON 
    MEDICAL CENTER , RESPIRATORY, ALSO VA MEDICAL AT OMAHA, AND OFFUT AIR FORCE BASE
    MEDICAL, THEN WENT TO MAYO CLINIC, ROCHESTER MN, AND NOW MY PERMANENT 
    DOCTORS  OKEEFE (HEART) AND KEIM (PULMO) IN NORFOLK, NE AND REHAB AT LADY OF 
    LOURDS HOSPITAL
8. I HAVE TAKEN EVERYTEST THAT IS IN THE SYSTEM, OMAHA MEDICAL SOME WERE EVEN ONLY ON
     THE HORIZON, MAYO CLINIC RAN  3 DAYS
9. THE RESPIRATORY  DEPARTMENTS DID TESTS, THE BEST WAS MAYO AND THEN OMAHA MED.    
10. YES
11. ALUPENT 2 PUFFS AS NEEDED, ADVAIR 1 PUFF MORNING AND EVE
12. SINGULAR, VANCERIL , ATROVENT,     
13. 250 MG THEODUR, PANCREASE ONE CAP AT MEALS, 2 MAGNISIUM TABS, 3CALCIUM TABS, 
       2 VITAMIN E TABS, 1 MULTIVITAMIN, 1 BACTRIM DAILY (800) , 1 RANITIDINE, 40MG ZOCOR IF N.   
14. NONE
15. NO
16. NONE EXCEPT VIAGRA , IT SEEMED TO MAKE MY HEART RACE SO I QUIT THAT RIGHT OFF.
17. YES , TREADMILL , STEPS, BICYCLE, 6 MIN WALK, 
18. NO
19. YES, 24/7 SINCE 1997
20. I GOT TO WATCH THE COLD
21. NONE RETIRED NAVY
22.  100 %
23. MEDICARE AND TRICARE FOR LIFE
24. NOT HAD OR SCHEDULED  BUT WAS CLASSED A GOOD CANDIDATE WHEN AT MAYO CLINIC
25. SURE, E MAIL ME ANYTIME, IF SOMEONE THEN WANTS OR PREFERS THE TELEPHONE, I CAN 
       THEN GIVE THEM MY PHONE NUMBER
26. EXERCISE IS THE SECRET, WITHOUT IT YOUR MEDICINE ISN'T DOING DIDDLY CRAP. :>)
27. FORMER, STOPPED IN HOSPITAL 1986, AND NEVER WANTED ONE AFTER THAT
28. DAILY, BUT NO LESS THAN 4 DAYS OUT OF A WEEK
29. THE MOST EFFECTIVE WAS PREDNISONE BUT MY PULMO DOC GOT ME OFF THAT, BECAUSE IT WAS LEACHING THE CALCIUM OUT OF MY BONES, HE STARTED ME ON ONE BACTRIM DAILY TO ASSIST MY WEAKENED IMMUNE SYSTEM, AND TO KNOCK ON WOOD I HAVENT HAD CONGESTION, SPUTUM OR A COLD IN THE LAST 2  1/2  YEARS,  I DO GET MY YEARLY FLU SHOT AND IVE HAD MY PNEUMO SHOT AND I GO QUITE A BIT, USE ABOUT 6 C BOTTLES AND 8 MINI BOTTLES OF OXYGEN IN LESS THAN 2 WEEKS, IT VARYS UP OR DOWN FROM THERE, THEN IM ON MY CONCENTRATOR AT HOME.
30. YES , AT OMAHA MED AND AT MAYO CLINIC. DON'T HAVE

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1. :  Robert Mullally, 1943, Male
2. :  bobmullally@msnl.com
3. :  Emphysema
4. :  61
5. :  61
6. :  Physical
7. :  no
8. :  lung e-rays
9. : 
10. : take none
11. : none...I am at 95.  Will need inhalers at 90 I'm told
12. :
13. :
14. :
15. : no
Q16: 
17. : no
18. : no
19. :
Q20:  no
21. : seeking employment
22. : applyed for full; awaiting appeal hearing
23. : no
24. : no
25. : yes...computer anytime
Q26: 
27. : yes
28. : no
29. : haven't taken any
30. : no

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1.  Donna Murphy, 1947, F
 2.  Iowa, donnakdonna2webtv.net
 3.  I have "E" with a "CB" component
 4.  50 when diagnosed
 5.  I think I was about 40 to 42 when I had what I now know were symptoms
 6.  Over the yrs went to many drs. with the symptoms and was treated for a
      cold.  In Dec. 97 I was taken by ambulance to the ER was dx in the hospital.
 7.  In the hospital I had a pulmo. treating me.
 8.  In the hospital I think they did an ABG
      Later, in his office I had two breathing tests.
  9  I think it was an RRT who directed the tests.  She explained nothing to me. 10.  I was pre-tested for nothing. 11.  I am on Combivent, 2puffs 4x's a day
12.  I don't know what was least effective
13.  Not on any oral meds. just take some vitamins
14.  I went from no meds. to a whole slew and have no idea which were or were not effective.
15.  Iam on Zyban for smoking.   1 pill twice a day.
16.  When I was  on the slew of meds., I had uncontrollable shaking,  couldn't make decisions, slept alot, Had no fine motor skills, increased appetite and a "moon" face caused by Pred.     I thought it was all caused by smoking withdrawle.
17.  Neither re-hab. nor exercise were mentioned by the first group of pulmos.  The second  recc. re-hab but it only has pulmonary patients at 7:30a and 2:30p--while I'm working
18   Not on nebulizer
19   Not on oxygen
20.  Heat with humidity bothers me and a dry cold is a little bothersome.   Sometimes I have trouble getting to sleep.  Incontinence only sometimes when I sneeze.
21.  Employed full-time.
22   N/a
23.  Have ins. through employeer and ,so far seem good.
24.  Nothing mentioned about LVRS or tx
25   Yes, through e-mail
26    Boy, I could talk forever about this!  I'll just say it's been my observation that med., doctors especially, need to pull theselves out of the middle ages.
27.  Still a struggeling smoker
28.  No, I don't exercise
29.  Haven't been sick since dx so don't know what works for me.
30   Nope

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1. :  Tom Murphy, 1948, Male
2. :  California, murphytom1@aol.com
3. :  Emphysema, Asthma
4. :  53
5. :  48
6. :  Breathing difficulties increased over time
7. :  Yes
8. :  Full set of PFT's
9. :  Tech.  No, learned most through internet.
10. : No
11. : Combivent and Advair
12. : Singulair
13. : Lasix 40M, Klorcon meq, Diovan 160, and Lovastaten 40m,
14. : Intal, Theophlline
15. : Yes.  Wellbuten and lexapro.
16. : No.
17. : Pulmonary Rehab.  Walking, stationary bike.
18. : No
19. : No
20. : Don't tolerate heat as well as I used to.
21. : Yes - Full time
22. : No
23. : HMO.  Coverage is good.
24. : Scheduled for evaluation 6-17-04.
25. : Yes.  Any Time
26. : This has been a very informative site for me.  Mostly a lurker.
27. : Yes.  Quit Oct of 2001.
28. : Yes.
29. : Doxycycline.
30. : No

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1. :  Shelley Mycan, 1954, female
2. :
3. :  Emphysema
4. :  36
5. :  36
6. :  Upper Respiratory Infection
7. :  Yes
8. :  PFT, Xrays, CT Scan
9. :  Respirologist, no
10. : No
11. : Advair 500, Bricanyl, Spiriva,
12. : Ventolin
13. : Uniphyll 600
14. :
15. : Yes, Zoloft 50 mg/Clonazepam .25 mg
Q16:  No
17. : Yes
18. : No
19. : Yes, 24/7
Q20:  No
21. : No
22. : Full disability
23. : Yes
24. : No
25. : Yes
Q26:
27. : Former
28. : Yes
29. : Avelox
30. : Yes

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1. :  Janet Myers 1945 female
2. :  Missouri  jesaja@clnet.net
3. :  Emphysema
4. :  57
5. :  42
6. :  could not breathe and migraines
7. :  not until I ask to be.
8. :  PFT and a heart ultrasound
9. :  pulmunary doctor and absolutely not
10. : no
11. : combivent 2 puffs 4 times daily and Advair twice daily
12. : what I'm taking is all I have taken
13. : Singular
14. : na
15. : yes zoloft tranzene
16. : Advair mouth sores combivent shakes and something gives me acid reflux but I don't know what
17. : rehab was suggested by my PC doc but never mentioned by pulmunoligist
18. : no
19. : yes night time and with exertion
20. : I have had intolerance to heat and cold but not all the time.. I've had sleep problems I have a barrage of problems one day and the next day I feel almost good
21. : not outside of house and farm
22. : no
23. : I have United Health a private and no my coverage isn't enough if they won't pay for rehab
24. : no I'm not bad enough for transplant and I don't think I would be considered for lung volume reduction because I think my lower lungs are involved
25. : I am always available for email
26. : I have very little faith in drs as I have had bad experiences with 2 pulmos.It seems that almost all my ills can be associated with COPD and the list just seems to get longer. It is frustrating to never know how you are going to feel day to day. I do have a better grasp and attitude since joining EFFORTS before I was very depressed and felt like I had no one to really talk to about how sick I am, even though I have a loving family
27. : Ohhhhh Yessss  former and I still miss it
28. : not formally but I try to walk and take care of house grandchild and animals
29. : I am lucky (knock on wood) I seldom get infections but when I do I use Z pack
30. : no but I am going to be whenever I can see my doctor again (when the flu season is over)

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