Profiles: P
Deceased members are noted by an *

1. :  Henrie Paetow, 1936 Female
2. :  New York hpaetow@msn.com
3. :  Emphysema
4. :  52
5. :  51
6. :  Shortness of Breath
7. :  No - None in my town
8. :  CT Scan
9. :  Dr at hospital out of town - very little inf. received
10. : No
11. : Albuterol 2 puffs 4 x  a day
12. : Combivent didn't agree with me
13. : Singulair once a day
14. : Theophylline, accolate
15. : no
Q16:  Combivent - made me very tired
17. : no none
18. : no
19. : .o2 at night - occasionally in day
Q20:  high humidity and very cold weather bother me - panic attacks
21. : retired
22. : no
23. : Medicare & BC/BS pretty good coverage
24. : no
25. : yes
Q26:  wish there was rehab and support groups in my town
27. : Former
28. : a little need to do more
29. : zithromax- am allergic to many anti-biotics
30. : no

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1. :  Lori Palermo, 1958, female
2. :  Pennsylvania, angels1220@aol.com, I am not a caregiver. my dad passed away 26 Dec. 2003 and i have been very inspired to help others with
learning and coping with lung disease.
3. :  Emphysema
4. :  N/A
5. :  N/A
6. :  N/A
7. :  N/A
8. :  N/A
9. :  N/A
10. : N/A
11. :
12. : N/A
13. : N/A
14. :
15. : N/A
16:  N/A
17. : N/A
18. : N/A
19. : N/A
20:  N/A
21. : N/A
22. : N/A
23. : N/A
24. : N/A
25. : I am willing to help anyone with any type of support they may need. They may e-mail me personally at my e-mail address above.
26:  this is a wonderful site. The people are so friendly and kind. I would like them to know they can come to me asking for advice, to vent their frustrations and just to talk.
27. : never
28. : N/A
29. : N/A
30. : N/A

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1. :  Gene Paplanus 1934  male
2. :  paplns@powrup.net
3. :  asthma, emphysema
4. :  48
5. :  45
6. :  wheezing
7. :  no
8. :  none
9. :  lung specs in 1993
10. : no
11. : combivent  3 puffs / 4 times pr day
12. : ?
13. : theadore
14. : ?
15. : nnnnnnno
16. : none
17. : yes/ no
18. : yes/donab
19. : 24/7
20. : no
21. : no
22. : no
23. : both
24. : no
25. : yes
26. :
27. : former
28. : thinking about it.
29. : ?
30. : ?

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1. :  Roz Parke*. 12/30/44 Female
2. :  Newy York State rozp1@optonline.net
3. :  end stage E.
4. :  several years ago
5. :  ?????? very young twenty's
6. :  When I 1st had difficulty breathing
7. :  yes
8. :  biopsy, CT scan x-rays MRI's blood tests etc.
9. :  pulmo dr. yes
10. : no
11. : not enough room to list all
12. : ????
13. : same as ques. 11
14. : ???????
15. : yes (3) types 30mg. remeron, 300mg. Effexor, xanax 1mg when needed
16. :No
17. : yes pulmo re-hab
18. : yes the usual
19. : 24/7 02
20. : heat I hate, short term memory lose.
21. : no
22. : full
23. : private, medicarewill start as of May 2004 yes
24. : yes
25. : e-mail usually afternoon
26. : very helpful group
27. : former
28. : yes
29. : ???
30. : ? will ask

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1. :  Mike Parker, 1946, Male
2. :  Maryland, mparker79@comcast.net
3. :  Emphysema
4. :  45
5. :  40
6. :  Very Bad Shortness of Breath
7. :  Yes, but did not go.  I knew what was wrong.
8. :  x-rays, PFT, ABG
9. :  My PCP and yes he laid it right out for me.
10. : NO
11. : Advair and Spiriva
12. : All except for Foradil
13. : I'm had transplant surgery, so too many to list here.
14. : Before the surgery, nothing was effective except Foradil
15. : NO
16. : Spiriva, slight amount of blood coughed up each morning.
17. : NO
18. : NO
19. : NO
20. : A little sleep problem
21. : Yes, full time
22. : NO
23. : Private insurance, very good coverage
24. : I have had lung transplant surgery
25. : Anytime by e-mail
26. : None
27. : Former
28. : Every day
29. : Z Pack
30. : Yes and it was negative

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1. :  Michael Parkey, 1973, Male
2. :  Illinois - meparkey73@aol.com
3. :  Emphysema
4. :  30
5. :  29
6. :  SOB
7. :  Yes
8. :  Alpha-One Blood Test, PFT's, and Chest CT
9. : 
10. :
11. : Advair 250/50 - 2 puffs daily (1-Morning & 1-Night) & Spiriva - 1 x daily
12. :
13. :
14. :
15. : Yes - Lexapro
16. :
17. : Pulmonary Re-hab
18. : No
19. : No
20. : No
21. : Employed
22. : No
23. : Private Insurance
24. : No
25. : Yes - Anytime via email above
26. :
27. : Yes - Trying desperately to quit
28. : Yes
29. :
30. : Yes

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1) Thomas Partosch , 11..15.1956, male
2) Utah, partosch@gmx.net
3) Emphysema
4) 45
5) 43
6) sob, and chest pain
7) yes
8) Lungvolume, CAT Scan, X-Rays
9) my Pulmo, yes
10) yes
11) Combivent 3 x daily, Atrovent twice daily
12) I am to new to this to comprehend what works better.
13) Combivent 3 x daily, Atrovent 2x daily, Albuterol 2 x Daily
14) see # 12
15) none
16) none
17) no
18) Schuco Nebulizer, Albuterol, Sodium Bromide
19) no
20) sleeplessness
21) self employed
22) none
23) I have no Insurance, due to the fact that I am German who came to the USA only two years ago and since I am only a resident and not worked enough here I can`t apply for SS and Medicare.
24) Pulmo says latest in five years I would need a Transplant.
25) yes, anytime by email
26) Since I have no Insurance and I don`t know how to finance all of this, I guess that I will have to leave my wife (who is American) and move back to Germany.....
27) I am smoke free before I got told I have Emphysema. Two years now since my last smoke.
28) a little
29) Baypen IV, for double sided lung infection in Germany
30) yes

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1. :  Brenda Patterson  1955   F
2. :  WV  brenda_2_u@yahoo.com
3. :  Asthma, Chronic Bronchitis, Emphysema
4. :  45
5. :  30
6. :  I couldnt breath
7. :  yes
8. :  Blood Gas, CT scan,CBC,CMP,and others I cant remember
9. :  my family Dr. and No I Did Not
10. : No
11. : None
12. : All of thim
13. : oxygen 24/7 2 to 4 L,spiriva 18mcg 1 puff a day,nebulizer 4 times a day, theophylline 300mg1- 2 xaday,prednisome 10 mg 1 every other day,advair diskus 500/50 2xaday,Mucinex 600mg 2aday,prevacid 30mg 1aday,hydrochlorothiazide 25mg 1aday,effexor xr 75mg 3aday,detrol la 4mg 1aday,trazodone hci 100mg 1 1/2 a day,calcium 600mg 2 aday
14. : singulair,zyrtec,
15. : yes---effexor xr,trazodone hci
16:  N/A
17. : yes i have been thru re-hab
18. : ipratropium bromide, albuterol sulfate
19. : at rest 2 L moving around 3-4 L      on it 24/7
20:  heat
21. : no
22. : full
23. : no
24. : nope
25. : im here any time
26:  n/a
27. : former
28. : yes
29. : z-pack
30. : yes

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1. :  Betty Patty  1937  female
2. :  Kansas- pattycake@websurf.net
3. :  all at one time
4. :  54
5. :  ???
6. :  couldn't breath
7. :  eventually
8. :  x-ray--Pulmonary function test
9. :  nurse with a tube and computer--not really
10. : No
11. : Neb-albuterol & atrovent--also advair disc
12. : taken too many to remember
13. : Predisone-15mg,guafensin-1200,theophiline600
14. : ??
15. : no
16. : sulfa-hoves--serevent hoarseness-- forgot which ones made my mouth very dry  celebrix -spots all over me
17. : yes, when I asked-It did me a lot of good
18. : yes--albuterol and atrovent mixed
19. : yes-always  except to blow my nose
20. : changes from day to day    feel pretty at the moment.
21. : no
22. : full
23. : medicare  not really
24. : no
25. : yes --I try to check this machine every day
26. : If I didn't know that God loved me, I'd be real depressed.
27. : former
28. : yes
29. : STILL LOOKING
30. : no

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1. :  Mary Payberg  09/02/1940
2. :  bunnie@northnet.org
3. :  COPD
4. :  1989
5. :  1945
6. :  very out of breath
7. :  yes
8. :  x-rays breathing test blood work
9. :  My Family DR. YES
10. : YES 
11. : provential atrovent advair
12. : not sure
13. : pred 5mg, theo, 200 2a day
14. : not sure
15. : xanax2.5 4 times a day prozac-2aday
16. :
17. : cardic class was  what i took for 8weeks
18. : xopenex-provential and atrovent mixed 4xday
19. : yes 2liters at rest 3 on activity
20. : no
21. : no
22. : disabled
23. : medicare medicaid
24. : no
25. : any time
26. : Have    REAL DEPRESSED times,almost a guilt feeling
27. : FORMER
28. : some
29. : cipro
30. : yes

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1. :  Eileen Peacock, 1949, female
2. :  Buckinghamshire UK, ebp01@tiscali.co.uk
3. :  Emphysema, Chronic Bronchitis
4. :  50
5. :  45
6. :  Breathlessness
7. :  Yes after asking to be seen by one
8. :  All
9. :  GP, yes
10. : No
11. : Flexitide 250 mcg x 4 puffs, Serivent 25 mcgs x 4 puffs, Spiriva 18 mcgs x 1 puff
12. : Combivent
13. : None to do with COPDs
14. :
15. : No
16:  No
17. : Only available this year 2006,
18. : Not regularly
19. : No
20:  Affected by the cold more than the heat
21. : Part-time
22. : just claim successfully for disability living allowance highest grade
23. : No do not have any
24. : No
25. : No
Q26:
27. : Yes former
28. : A little
29. : amoxilla not spelt properly
30. : No

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1. :  Ines Peery 1942 Female
2. :  Ohio         ipeery@charter.net
3. :  Asthma,Emphysema
4. :  61
5. :  50
6. : 
7. :  yes
8. : 
9. :  the Dr..     No
10. :
11. : Advair 100/50, Spiriva  
12. :
13. :
14. :
15. : no
16. :
17. :
18. : no
19. :
20. :
21. : Retired
22. :
23. :
24. : no
25. : yes
26. :
27. : yes Former 12 yrs
28. :
29. :
30. :

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1. :  George Penston, 10/09/34 Male
2. :  george@garcia-agency.com
3. :  Emphysema
4. :  67
5. :  66
6. :  SOB
7. :  YES
8. :  Cat Scan, Lung Volume,MRI
9. :  Hospital YES
10. : No
11. : Albuterol
12. : Spiriva HandiHaler
13. : Prednisone 30mg.&Hydrocodon 7.5mg
14. : Prednisone
15. : no
16:  Gained weight
17. : None
18. : Albuterol
19. : 24/7
20:   Chest Pain, Rain Days
21. : Full Time
22. : No
23. : HMO & Medicare Yes
24. : No- Lower Lobs of the lungs
25. : george@garci-agency.com
26:  Have had 3 spontaneous-nemo-thoraxes 40yrs ago
27. : Smoker Former stoped 20yrs.ago
28. : No-arthritis in both knees,2 stents Heart
29. : Prednisone
30. : No

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1. Sandy Peplinski    1945   female
2.  Michigan      Queensas98@aol.com
3.  Emphysema with Asthma component and fibrosis
4.  45
5.  40
6.  have always seen Dr. every 3 months
7.  Saw Pulmo. Dr. at 50
8.  PFT, Cat Scans, Echocardiogram, xrays, blood studies
9.  Test ordered by Pul . Dr.  Yes
10. Yes
11. Proventil q4h, Atrovent 4xdaily, Flovent220 3puff2xdaily
12. Maxair,
13. Theodur 200mgs. daily, synthroid0.075 daily, premarin .9 daily,
prevacid
once daily, propulsid 2xdaily as needed, Zoloft 1 daily, Desyrel 75mg.
daily
14 Singulair and Accolate
15. Yes Zoloft and Desyrel
16. Acid reflux from the mixture,  also fat from prednisone!!
17. Yes I go to rehab somewhat regularly, treadmill, bike, rowing machine,
ergometer.  Also some band work.
18. Yes I use a nebulizer when I'm not getting good reactions from the
MDIs. I
use a Devilbiss and I also have a micro battery operated one.
19.  O2 2L 24  Liquid
20.  temperature intolerance to both heat and cold.  Incontinence during
extreme SOB periods.  Muscle weakness and fatigue.
21.  I am self employed and have not fired myself yet.  I'm quite lenient
about working hours, fortunately I have some very good employees and a
great
business partner.
22.  Not yet.
23.  Private Insurance, so far excellent coverage.
24.  I was in program at U of M, but they dicided my disease was too diffuse to be helped by LVRS.
25.  I will be more than happy to help anyone I can anytime I can.
26.  I have learned more at this site than I have learned in all the years I've had this disease.  Also I am a retired Lab Tech.
27.  Former, quit 4 and 1/2 years ago.
28.  Exercise in Pulmonary Rehab.
29.  I have not found one I like.  Biaxin has been helpful, but causes stomach
upset.

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1 Don Perry 1935 M
2 Ca. doan@charter.net 
2a no
3 Emphysema
4 58
5 ?
6 SOB
7 yes
8  x-rays breath test
9 Pulm Doc. yes
10 yes  
11 Servent 2 pufs 2X day, Azmacourt 3 puf 3X day, combivent 2 pufs 3 X day.
12 serevent 
13 none except the inhalers  
14 n/a    
15 tranquilzers about 2 x week   
16 no  
17 yes walk at least 1 mile every day   
18 when I have a lung infection  
19 at night asleep  
20 wake up at night  
21 no  
22 no  
23 hmo  
24 no 
25 yes  
26 I found that after I did the pulminary rehap I was a MUCH better person the breathing tec. and excercise is the key  
27 former  
28 yes  
29 don't know the name 
30 I don't think so

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1. Albert Cole Permenter (ac) 1933 male
2. Louisiana  permente@bayou.com (318)259-4084
3.  Emphysema
4. 47
5.I don't  know
6. Thought was having heart trouble.I would have severe sob and it would
go away then it began to happen every week.Company made me go to Dr.
7.Yes
8. Remember Arterial blood gases and Xray
9.Dr. Leroy Joyner. yes he sat me and my wife down and said if I did'nt quit smoking I would be dead in a year he said I had about 54 percent of my lungs his words were you have spit them out  . He put in his report to my co. Dr. I was a 47 year old man
with an  80 year old body.
10. No
11. Combivent  4 puffs  4x a day Proventil 4 puffs 2x a day Aszmocort 4 puffs 2 x a day
12. Vanceril ,  Serevent
13.Theophylline 200mg cr 2 tab a day,  Proventil RE Tab 4 MG-ER  2 Tabs a day, Dilacorxr 1 cap a day
Quinidine SU Tab 300     MG ER  2 Tabs a day
14. All are effective  but I have antibiotics about every month or so.mostly its Mrethypred 4 meg dose pack
15. Yes
16. YES    Deltasone not sure about spelling  I saw things crazy like BADDDD
17.No  but I quit smoking and I started walking every day and I walked in march of dimes 6k walk from 1981 thru 1994 never miss a single one and always finished pretty early My Company insisted on it. and I loved every minute of it.
18.No
19. Yes was on 2L 24 hrs, after last rehab  2L 16 hrs. Dr. said doing good
20.Just past summer with all the smoke from the fires was bad  Nothing else.
21. no
22 Company   Long term. disability till march of 2001.Then I will retire Am on full S.S. and draw 75percent of my salary from my Co.
23.Private  Yes
24.No
25. Yes  any time
26. I believe in Rehab. If not for them I don't think I would be out of the bed. I believe I will be going strong      when I die because I am
going to work my body as long as I have any breath. I think there should be more emphases on exercise than any other single thing.  If you take your meds right eat right and exercise we are going to be hear a while .
27.Former
28. Yes at home also  hospital rehab 3 days a week
29. Z -Pack and Mrethypred 4 mg.

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Donald Peterson  1926  Male
  1. Victoria Australia jendon11@hotmail.com
  2. Emphysema (chronic)
  3. 65
  4. 65
  5. unproductive cough
  6. yes
  7. Lung function test   &  Xray
  8. Specialist    No
  9. No
  10. Seretide    2 puffs a day
  11. pulmacort  serevent
  12. prednisolone 5mg once a day
  13. same as 12
  14. yes  Zoloft 100mg once a day ----Murelax 30mg 1/2 as required
  15. no
  16. yes   mainly walking & general movements
  17. yes----Ventolin Nebules 5mg   &  Atrovent Adult 500ug/1mg 4-5 times a day
  18. no
  19. cold and humidity
  20. retired
  21. no
  22. no
  23. In this country 70years is the cut off age. A scan was inconclusive.
  24. yes
  25. slight effort is the main problem
  26. former 12 years ago
  27. not really
  28. Prednisolone  up to 50mg a day then taper off over a month
  29. no ??

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1. John Peterson*, 1943, male.
2. Massachusetts,   lillijohn@adelphia.net.  508-563-7730
        22 Fordham Rd, East Falmouth, MA 02536
3. COPD. Asthma, Chronic Bronchitis & Emphysema, post LVRS, listed for tx 2/16/01
4. 40.
5. 30
6. coughing and frequent colds
7. not until 1995
8. pulmonary tests
9. The  first time was the VA and I did not understand (85) The second time was UCSF and it was explained so that I did understand (90)
10. Yes
11. Combivent, 2pf 4x a day
       Atrovent, 2pf 4x a day
       Serivent, 2pf 2x a day
       Flovent, 4pf 2x a day
12. I was on Azmacort, 12pf 2x a day maxed out and the Flovent works better.
13. Singular, Prednasone, Doxicycolin
14. Cipro
15. Paxil 10mg
16. no
17. I go to rehab three days a week on the thredmill, 45 min, airdine, 15 min and whatever else to make up to one hour
18. Divilbiss
19. o2 24/7 3L at rest and sleeping. 6L walking & 9L at rehab
20. I have problems with the heat &  cold
21. Disabled
22. Full disability as a result of your illness?
23. Do you have private insurance, Medicare & an HMO.
24. LVRS 11/13/98 @ UCSF San Francisco listed fir tx 2/16/01 @ Brigham & Women's Boston
25. I am available
26. I had pneumonia every three months after the LVRS until they put me on a antibiotic the first ten days of each month. That was two years later and I lost a lot in that time.
27. Former smoker and a mechanic for 40 years with the fumes and exhaust
28. Yes
29. Doxycicolin, cipro does not work for me
30. I have been tested for Alpha1 three times

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1. :  Ruth Phifer 1940 F
2. :  Tennessee walkingtall41@webtv.net
3. :  Asthma Emphysema
4. :  64
5. :  59
6. :  shortness of breath
7. :  yes
8. :  x-rays,lung air flow
9. :  lung doctor yes
10. : no
11. : albuterol 17mg. foradil 12mg. spiriva cap boeh
12. : none
13. : terbutaline x3daily singulair 10mg.
14. : none
15. : none
Q16:  none
17. : no
18. : albuterol sulfate 2.5mg.
19. : yes,as needed at night
Q20:  both hot and cold
21. : no
22. : no
23. : for now
24. : no
25. : yes
Q26:  none
27. : former
28. : some
29. : ciprofloxacin 500mg. predisone
30. : no

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1.  Barbara Phinney, 1942, female. DOB 10/6/42
2.  San Diego, California, Tbearmaker@aol.com
3.  Asthma, Chronic Bronchitis, Emphysema, Breast Cancer Survivor.
4.  37 told I have starting of emphysema
5.  40
6.  Short of breath
7.  No
8.  Pulmonary function test
9.  Done by Pulmonary Department Portsmouth General Hospital, Virginia.
10.  No
11.  None
12.  Preventil (allergic to propellant)
13.  Prednisone 5 mg once a day; Diovan 160 mg once a day; Warfrin Sodium 5 mg. once a day; Aldactone 25 mg twice a day if needed, Laxis 40 mg twice a day if needed; Bellamine-S one table twice a day; Accolate tablet twice a day; Paxil 20 mg once a day; Clonidine HCL 0.1 mg 2 at bedtime.
14. None
15.  Yes, Paxil 20 mg once a day.
16.  Don't know they are still trying to find out why I have a rash.  since April they have been changing my medications and since I still have the rash they have not found out what is causing it yet.
17.  No.
18.  I use nebulizer 4 times a day with albuterol and atrovent.
19.  No.
20.  No
21.  No
22.  full disability
23.  Private Insurance benefits Cobra until October 1999 when Medicare will take over.
24.  No.
25.  Yes, anytime.
26.  May of 1997 I developed blood clots in my lungs. They developed after 6 months of chemo. That damaged my lungs and I now use a 3 wheel scooter for any long distance walking.  I am however grateful to be alive today.
27.  Former smoker
28.  I do yard work and walk up and down the stairs for exercise.
29.  The best I have found for me is Biaxin.

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1. :  Melody Pierson, 1957, female
2. :  melody@iciweb.com
3. :  Asthma/Emphysema
4. :  10 years ago
5. :  Asthma, 4 years old
6. :  Difficulty breathing
7. :  Yes
8. :  PFT, walking, a whole array
9. :  Pulminologist
10. : No
11. : Spiriva, Advair
12. : Flovent
13. : Prednisone, 20 milligrams per day, weaning down.
14. : Leviquan
15. : No
16. : When I used Combivent, it made my hands shake; they still shake at times.
17. : Yes. Right now, (Nov 4/03) I am in a Rehab facility for 4 weeks. There are very specific exercises to help increase inhalation and help with exhalation and endurance.
18. : no
19. : no
20. : Trembling of hands at time. Cold temperatures are difficult.
21. : Self-emplyed/Full time
22. : N/A
23. : Private Insurance; Coverage is sufficient.
24. : It may be an option.
25. : Yes. They can email anytime.
26. : The site is helpful; the mailing list is very informative and supportive.
27. : Former
28. : Yes
29. : Leviquan
30. : No

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1. :  Connie Pingree, 1944  F
2. :   Ky.  cpingree@direcway.com
3. :  Emphysema
4. :  56
5. :  40
6. :  pnumonia
7. :  yes
8. :  x-ray, c-scan, breathing
9. :  no
10. : nol
11. : combivent
12. :
13. : none
14. : na
15. : xanax
16. :
17. : yes
18. :
19. : 24/7
20. :
21. : no
22. : full
23. : Medicare and no it's not sufficient
24. : Lung transplatatation
25. : yes
26. :
27. : Former
28. : some not enough
29. :
30. : yes

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1. :  DOUGLAS W. PITTMAN,1939, MALE
2. :  S.C. DWENDELLP@AOL.COM
3. :  EMPHYSEMA
4. :  62
5. :  62
6. :  SOB
7. :  YES
8. :  SPIROMETRY, X-RAYS
9. :  DR. DIDN'T GET SUFFICIENT INFO
10. : NO
11. : ADVAIR 500/50 2XDAILY, SPIRIVA 1X DAY,ALBUTEROL2 PUFFS QID/PRN
12. : COMBIVENT
13. : PREDNISONE 10 MgX2,LIPITOR 20 MgX1,PROTONIX 10 MgX1,FLEXERIL10MgPRN,RESTORIL30MgPRN
14. : SIDE EFFECTS OF PREDNISONE WERE UNDESIRABLE
15. : FLEXERIL 10 Mg MUSCLE SPASMS/RESTORIL 30Mg HS-FOR SLEEP PRN
16:  PREDNISONE-EXTREMME FLUID RETENTION-CHEST-STOMACH-NECK
17. : YES-NO TRANSPORTATION--WALKING WAS SUGGESTED
18. : NO
19. : 2L 24/7-EXCEPT WHEN AT COMPUTER
20:  NO
21. : RETIRED
22. : AM ON SSA @ 65
23. : MEDICARE-SUPPLEMENTAL MUTUAL OF OMAHA
24. : NO
25. :
26:  I WAS EXTREMELY PLEASED TO BE LUCKY ENOUGH TO FIND THIS GROUP
27. : FORMER--QUIT  AUG. 9, 2001
28. : SOME WALKING
29. : DIFULCAN
30. : NO

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1. :  Torild Plumlee
2. :  Oklahoma
3. :  Asthma, Emphysema
4. :  52
5. :  50
6. :  Pneumonia
7. :  Yes
8. :  x-ray, ct scan
9. :  Pulmo/hospital
10. : No
11. : Advair 250/50 & Combivent
12. :
13. : On and off Predinsone
14. :
15. : Zoloft 50mg & Xanax 0.5 when on Prednisone
16. : bladder problems, thrush, anxiety and depression.  When on Prednisone, cramps in fingers and feet.
17. : No
18. : Yes, Duoneb 3 to four times a day
19. : No
20. : sleeplessness, intolerance to humidity, allergies.
21. : No
22. : No
23. : Blue Cross Blue Shield.  Coverage not sufficient, doesn't pay for meds, amnd high deductalbe
24. : No
25. : e-mail
26. :
27. : Former
28. : No
29. : Cipro
30. : No

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1. Carolyn Poe*  1932 Female
2.North Carolina (western) larrypoe@charter.net
2a Not at present. Cared for invalid mother for 6 years
3.Bronchitis and Emphysema
4. 1997
5. 1993 apprx.
6. Weakness and dizziness - went to ER
7. Yes, but did not go.  Stayed with family MD.
8. ABG and x-rays, later walking with oximeter.
9. Family MD and Resp. Therapist. I thought I knew all about my condition so did not ask any questions. Medical personnell did not volunteer any explanations.
10. No.
11. Atrovent and Flovent.  Breathaire for rescue.
12. All were effective
13. Hyzaar for hypertension 50 mg. 1/2 tablet daily.
14.  NA
15. No
16. Yes. Serevent inhaler after about 9 months caused serious sleep disturbances, exaggerated startle reaction and  mild enuresis (night bedwetting).
17. Yes. Referred to re-hab clinic in hospital in another town (Our local hospital does not have a clinic). Treadmill, arm exercise, exercycle and chair exercises.
18. No
19.Yes. Continuously at 2lpm.  Turned up to 5 during exercise.
20. Occasional restlessness and sleeplessness especially if I am late with inhalants.  Intolerant of cold air.
21. No. Heavy volunteer and church involvement.
22.No, I'm a housewife and I cannot do all of the housework anymore. We hire a weekly house cleaner.
23. Medicare and medi-gap with BC/BS of NC
24. No
25. Yes. E-mail. Eastern time. Never on Sunday.
26. About onset - I denied my symptoms for years and it was a big relief to finally be diagnosed and treated.  I began feeling much better with the O2 and inhaler meds, and a good doctor.
27.  Former - for 35 years. 3 packs a day before I quit in 1984.
28. Yes. Exercycle and treadmill.  Not vigourously, but every day.
29. Penicillin  or a sulfa something.
30.  No.

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1. :  Gael Polchinski, 1942, Female
2. :   ME gael@midcoast.com
3. :  Emphysema
4. :  58
5. :  50
6. :  Regular physical
7. :  Yes
8. :  Cat scan/ x-rays spiro, abg
9. :  Doctor
10. : N o
11. : Azmacort , Albuterol
12. : None
13. : Zocor 40, Predisonne 5, Lasix 80, Lasix 40 Fosomax 70 Uniphyl
14. : None
15. : NO
16. : No
17. : Yes - Did not go - Insurance Would Not pay
18. : Albuterol
19. : Yes 24/7
20. : Sleeplesness, heat/humidity affects breathing
21. : No
22. : Full Disability
23. : Medicare - supplemental
24. : NO
25. :
26. :
27. : Yes 40 years
28. : Yes
29. : Ampacillin
30. : NO

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1. Bonnie Pollard,1934,Female
2. Ohio,bpollard@voyager.net
2a. No
3. Emphysema
4. 67
5. 66
6.Shortness of breath while working in yard
7. yes
8. Pulmonary Test at Hospital
9.A pulmonary tech,yes
10.no
11. Combivent inhaler,14.7gm,2 puffs,4 times a day
12.I was given Advair first then combivent.Cannot say which is least effective.
13.High blood pressure pills and estrogen
14. none
15. yes. Paxil 20mg
16. no
17. yes,yes
18.no
19.no
20. yes,no, no,no
21. no
22.no
23.yes, medicare,yes
24. no
25. yes,email
26. I smoked for 50 years and only quit in April 2001. After I stopped smoking I found it much harder to do housework and drive or go shopping. That is when I discovered I have emphysema.
27.yes.yes
28.yes (rehab)
29. arithomicen
30.no

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1. John Polozzo. 1927, male
2.  California   jpolozzo@aol.cam
3.  No
4.  Cronic Bronchitus, Emphysema
5.  Around 45?
6.  was diagnosed as having slight case of emphysema after a hernia operation
7.  No
8.  Chest x ray
9.  Hospital in New Jeresey, yes
10. n/a
11. Ventolin liguid solution in bebulizer 4times daily or when needed
      Ventolin  inhaler 6puffs-4 times daily
       Atrovent 2puffs 4 times daily
       Serevent   " "       2   "        "
        Flovent     "  "     2    "        "
        Beconase  2puffs each nostril 2 times daily
12.    ?
13.  None
14.   Never had any
15.   No
16.   No
17.   No
18.   Pulmo aide,   Ventolin
19.   Yes, 24 hrs a day
20.   Heat and cold both, incontinence
21.   No
22.   Retired
23.   Medicare, and HMO, NO
24.   No
25.   Anytime
26.   None
27.   Former
28.   Once in awhile ,mostly when I go somewhwere that requires walking any distance, then I get my wheelchair and walk in that while seated and  I lift small weights while seated
29.   I haven't found one yet, None of them seem to work for any extended time, I finish them off, and a day or two later seem to be infected again
30.   No

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1. :  Betty Jo Power 6/6/32 female*
2. :  Hilo Hi bjgranny@earthlink.net
3. :  COPD/ SEVERE EMPHYSEMA
4. :  51
5. :  coughing increased at age 30
6. :  short of breath
7. :  yes
8. :  Attended a smoking no more clinic and my FEV1 volumn was either 57 or59
9. :  Lung Asso along with Cancer Clinic
10. : yes
11. : combivent/serevent/flovent/ twice a day
12. : na
13. : none
14. : na
15. : paxel 40 mi daily-for anxiety
16. : advair- I was constantly getting thrush -So my doctor switched me to serevent and flovent instead of advair
17. : Yes I  attended rehab in 1992 .treadmill and stationary bikes along with purse lip breathing exercising
18. : yes twice a day I use the new DuoNeb in my nebulizer
19. : Oh yes 24/7 no holidays on#2psi
20. : yes I am still  having some dreams that I am not really enjoying. other than that I still get thrush even tho I mouthwash and use biodent toothpaste
21. : NO thank God- I worked 50 years thats enough
22. : social security /military alimony
23. : Medicare and Tricare former military spouse .Yes it is sufficient
24. : no/was told I am not a candidate due to severe stage emohysema
25. : email bjgranny@earthlink.net or Mail to Bety Jo Power 145 Kamana St Hilo Hi 05720
26. : I took some of the EFFORTS brochures to my docs office. Hope to find more interested Hilo Hi members. WE CAN BE LONELY BUT WE NEVER HAVE TO BE ALONE ITS A MATTER OF CHOICE
27. : recovering smoker
28. : yes every day
29. : cipro- does have side effects but seems to work best for me
30. : not sure but my grandparents died from tuberculosis

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1- Lucien N. Pratt*, dob-9-1-31, Male
2-183 Virginia Avenue, Woonsocket, RI 02895, Fax 401-765-1897, Phone 401-765-0781, E-Mail prattl91@cox.net
2a, No I am not a caregiver
3Emphysema
4- About 68 or 69
5- I had breathing problems especially in cold weather but no one ever associated with Emphysema
6-I had gone to Canada, to a winter carnival and had a hard time to breath but at first I thought that it was because of the very cold weather
7-No, I wish that I had as maybe I could of control this better
8-The first time that I went to a breathing doctor, he gave me a tube or something to blow in then he said I needed inhalers and gave me a prescription for atrovent, then later to combivent
9-The first time it was a test in the Dr's Office then I had others at the hospital via computerized repports, and no I really do not feel that I received proper info, because I had stopped smoking long before I started these test.
10-, No I do not think that I received any test relative to the medication, however, I did have to give sputum samples and as a result
it was determined that I had yeast infection on my lungs, and I was given medication for that, also levoquin andfluconazole
11-, Atrovent, flovent and combivent, all 2 puffs 3 times daily or as needed.
12-Maybe flovent, combivent is the most helpful, I have tried advair but it does not work good with me.
13- Theodur 24, Levoquin   both one a day.
14- Biaxin , I was told that my type of emphysema, they had tried 21 different type of antibiotics and only levoquin proved best.
15- No I do not need anti-depressants and or tranquilizers although at times when I get an attack, I do get nervous and I think maybe it would help.
16- Only one that I know of I beleive it was Zythromas, intovenous and my arm got real itchy and it swelled-up
17- I went through a 10 week pulmanory therapy, and some information and exercise did help.
18-Yes, I have two nebulizer one downstairs and another up stairs and use albuterol 2.5 Ipratropium 0.5mg 3 mi comp.also
I use Mucous mixture to loosen phlim once or twice a day.
19- I was using oxygen 24 hrs a day, and have been using it since October, by way of nose canula's, however, two weeks ago my nostrils had dried-up so much that my nose started to bleed, and did so for 6 hours, neither we here at home could stop it, the rescue came and they could not do anything and was transported to the hospital and after 6 hours a specialist doctor cauterized it however I required 2 blood trandusion.
20-Just what I stated above and yes cold weather bothers me.
21- I am a retired police officer, I was just elected to the School Board here in Woonsocket, however I am involved with veterans affair and fraternal and vet associations.
22- I do not think that I am fully disabled, but restricted somewhat.
23-I have medicare and Blue Cross Plan 65
24-No, do not know much about that
25-The reason that I said that I would serve as a chapter Leader is because I want to help out and keep me busy, I do work at time on a volunteer basis at the VA Hospital in Providence.
26-As I help others if I can, I will be helping myself, I know that I have met some very nice people through EFFORTS and have learned a lot.
27, I gave up smoking 25 years ago.
28, I do nmot exercise as I should but I am retricted due the fact that I had 3 cervical disk problem which were operated on, two rotator cup operastion and need one now but I have delayed it because of my breathing and probably will have to be operated on within the nect couplr of weeks, but I am still very active and I feel that what I do gives me the exercise enough.
29-Levoquin
30- I really do not know what is the testing for alpha1 genetic emphysema, but write me and let me know and I will check with my Doctors. 

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1. :  Leon Press, 1947, Male
2. :  New Jersey, leon@leonpress.com
3. :  Emphysema, Stage 4
4. :  41
5. :  41
6. :  Pneumonia
7. :  Not at that time
8. :  Xrays & PFT
9. :  PC (Personal Friend) Not really
10. : No
11. : Seravent Discus 2X, Combivent 2 puff 4X, Albuterol as needed & in Neb.
12. : Advair, Flovent, ?
13. : Prednisone 8mg, theophyline 200mg 2X, Fosomax 70, Imdur, Coreg, Nexium,
14. : Spiriva, Singulair
15. : Effexor 37.5mg 1X daily
16:  Advair/Spiriva did nothing & had SOB, Thrush, lost voice
17. : In Pulmo Rehab now & home exercise
18. : yes, albuterol
19. : yes, 2lpm most of time as per Columbia Pres.
20:  Hot sweats, Sleeplessness
21. : disabled
22. : yes
23. : Medicare, HMO secondary, not really.
24. : No, being Re-evaluated now, was high risk in June
25. : yes
26:  None
27. : Former, over 40 years
28. : Yes
29. : Don't know
30. : Not to my knowledge

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1. :  Janice Price, 1948, female
2. :  IN  jayshouse@skyenet.net
3. :  Emphysema
4. :  55
5. : 
6. :  Short of breath
7. :  Not yet
8. :  Chest xray, CT scan, Echogram
9. :  NO
10. : yes
11. :
12. :
13. :
14. :
15. : none
16. :
17. : yes,  I'm still looking into this.
18. : Albuterol
19. : 24/7  oxygen
20. :
21. : No
22. : Full
23. : Applied
24. : no
25. :
26. :
27. : Former
28. : No
29. :
30. : No

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1. :  Ray Price,1933, Male
2. :  Montana, rayprice@centurytel.net
3. :  all three
4. :  50
5. :  48
6. :  very sick
7. :  Not then
8. :  X-Ray
9. :  PCP, no
10. : no
11. : Azmacort 4 puffs twice a day,Serevent discus
12. :
13. :
14. :
15. : Buspar 15 mg twice a day
16. : none
17. : no
18. : albuterol/atrovent/pulmicort
19. : 24/7 2-5 lpm
20. : cold swwms to cause my lungs to not want to work
21. : no
22. : no
23. : Medicare/gap
24. : no too old
25. : yes any time
26. :
27. : Former
28. : as best I can
29. : Ztabs
30. :

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1. :  Sheila Price, 1942, F.
2. :  Missouri, supershe@gmail.com
3. :  COPD/Emphysema Related
4. :  58
5. :  I don't know really. I noticed severe shortness of breath about 3-4
months before I went to the Dr.
6. :  Severe shortness of breath... but first, I quit smoking for 4 weeks
before I would go to the Dr.
7. :  No. I was sent to a large clinic for a lot of tests to be done
8. :  They checked a lot of things. EKG, Echocardio, Treadmill, Bloodwork,
Spirometry was the last..
9. :  Won't name names, but.. no.. didn't receive good information.
Basically.. not much at all.
10. : no
11. : I'm in a drug study now for the advancement of COPD/Emphysema
treatment. The study drug is Advair/either with, or without Serevent
added. Albuteral is my rescue drug.
12. : Combivent. Some kind of a problem with it, caused wheezing to worsen
13. : Lasix/and Potassium Supplement/ I also take Glucosamine Chondroitan,
an anti-oxidant pill which Contains Vitamins A,C,E.  I take Prednisone
bursts when required
14. : Combivent
15. : no
16:  Combivent...  It caused my breathing to worsen, wheezing
17. : no
18. : no
19. : no
20:  I am not very tolerant of heat, or cold.
21. : full time, self employed, sell on ebay
22. : no
23. : no
24. : no
25. : yes, if I can. Please stick with emails
26:  I was a very active member of Quitnet, the Quitting Smoking Support
Group.... and am active in several other Boards, not COPD related however.
27. : Former. Quit June 29, 2000
28. : some
29. : Actually.. I don't know what it was. I'd have to check
30. : no

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1. :  Sue Priestley, 1949, Female
2. :  Arizona azsuzie@excite.com
3. :  Emphysema
4. :  55
5. :  55
6. :  Regular Doctor Visit
7. :  No
8. : 
9. :  Doctor
10. : N/A
11. : N/A
12. :
13. : N/A
14. :
15. : no
16:  no
17. : no
18. :
19. : no
20:  no
21. : Full-time
22. : N/A
23. : Private
24. : No
25. :
26: 
27. : Former
28. : No
29. :
30. : No

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1. Bill Probstfield,  1940, Male
2. Oregon   pros@charter.net
2.a. No
3. COPD , some chronic bronchitis but mainly severe emphysema
4. emphysema 45,  COPD 50 
5. chronic smokers bronchitis 40, major s.o.b. 50 ish         
6. smokers cough and bronchitis 
7. not at first, then for alpha 1 testing, then as a result of severe emphysema then for alpha 1 , LVRS, and TX evaluation.
8. chest x-ray, complete pul.function tests, a blood gase's., CAT scans, nuclear lung scans, high resolution lung scans, pul.-rehab. testing; 6 min walk etc.  FEV1 15% of normal "severe obstructive lung defect" "there is a severe decrease in diffusing capacity". ( June 2000 test)
9. a.PCP's, Gen Pract. Docs, Pulmonologist, RT's,  X-Ray Techs, RN's
b. NO! "ask your doc" responses only,  self study and research to ask correct question.
10. only for "bronchodilators" via peak-flow testing. All other meds were prescribed and seldom monitored for effectiveness.
11. Flovent 110, 2 puffs twice daily, Albuterol with Atrovent nebulizer every 4 hours 4 x daily, Combivent inhaler as a  (back-up bronchodilator)  2 puffs prn ( when necessary) 
12. (It took many months of trial and error and my evaluation by very slowly discontining to learn if they were really effective for " emphysema": they were Alupent), Serevent , Aerobid, & Azmacort,
13.  HCTZ 12.5 mg. (one tab daily)   and one low adult strength Aspirin ( 81 mg)
14.    Theophylline- Theodor, Voltex, Prednisone, Zoloft,Buspar, Proscar, Doxcycl, Cardura,, Hytrin, Orasone, Theochron, Zithromax, Acetamnophen, Biaxin,Provental Retab,
15. a. yes and b. Xanax to counter Albuterol anxiousness on occasion
16. Side effects not "reactions" of Corticosteroids which are many including  60 lb. weight gain, cataracts, and more; which are not really "adverse reactions"
17. a. Pulmonary Rehab srongly suggested,and b.  dailyTreadmill as a minimum.
18. Yes, a "Pulmo- aide " both in home and portabnle.  Albuterol with Atrovent
19. a.Yes and b. Have been on O2 full time since March...and will be forever.
20.  Yes..   excessive hot or cold air, as well as "thin" air at high altitudes are very hard for me to breathe.
21. No, I volunteer approx. 600 hours per year at the Medical Center.
22. Yes, full SSD
23.a. I am on Medicare and have supplemental private PPO medical insurance..
b. It is not sufficient for Hearing, Sight, Dental, or medications.
24. No. After careful evaluation, I have decided against it at this time; as a result of morbidity changes in quality of my life .
25. a. Yes, and b. Starting with e-mail, then possibly address and telephone questions or any assistance I may be able to offer other patients.
26. I have learned that We are each responsible to manage our own health including COPD. And in so doing,
We each have a responsibility to learn as much as we can about our disease.
27. Yes, I smoked for 35 years, during the last few years at 3 packs per day.
28. Absolutely, to maintain my best weight, cardio vascular condition, and metabolism. I daily treadmill all I can: which is now  30 minutes at 2.5 mph
29. Augmentin 875 mg   &   Cipro 500 mg
30. Yes, in 1992 for a Alpha Study..I did not qualify with substantial Alpha 1 antitrypsin deficiency.

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#1 Ian R Pugh--1952--male
#2 Ontario.Canada 1timber@drytel.net
#2 A--- no
#3  emphysema
#4 age 45---1997
#5 age 43---1995
#6 SOB and coughing up lots
#7 age 45---1997
#8 Pulmonary Function Tests, Chest X-Rays,Arterial Blood Gases,Ventilation Perfusion Scan, CT,Cat Scan of chest, six minute walk,Oximetry Testing,Blood work,RNA-First-Pass and      Exercise, 2d Echo with Doppler,ECG,Thallium Persantine Scan, Bone Density, Angiogram,  and liver biopsy. might have missed putting some down?  #9 Yes the Health Care people (Doctors, technicians, respirtory staff ,tx team) spent lots of time  explaining all that was going on to both my wife Betty and my self.
#10  I think so?
#11  Ventalin100mcg---2 puffs x twice   day
       Atrovent   20?   ----2 puffs x four times day
       Flovent  125 mcg---2 puffs x twice    day
#12  Pulmacourt
#13  Uniphyl SR Theophylline Anhydrous---600mg  x once daily
#14  Theophylline
#15  none used
#16  Not to my knowledge right now  but  had a hard time at first on the theophylline( upset stomach)
#17 YES   and  am still in the program  i go every 12 to 16 weeks  for The  Re Hab  Program  they  admit  me to hospital and do lung function tests  blood and gas tests  exercise tests and  check weight etc
#18 none used
#19  Am on O2 24 hours day 7 days  week  I have   Concentrator , portable liquid  system, and back up  high pressure bottles  for / emergency or flying  I use  a back pack to carry my liquid portable and get around quite well.
#20  Yes  finding it colder than ever before  but am trying to lose weight so?
#21  not working
#22  Full  Disability
#23 Yes I have sufficant coverage/ Canadian health system seems to be on top of this?
#24   yes  have been tested and  when condition worsens will be tx
#25   yes  9 am 9pm 7 days a week    e-  mail  or  snail mail
        ian pugh     RR #1 BOX 31 Dryden Ontario, Canada P8N-2Y4
#26  Very mad at first  wanted to shoot the messanger.  But have calmed down somewhat!  TRYING TO KEEP MY SPIRTS UP  but  like you all know  some days are better than others.  I talk at the school on  the harm of starting smoking
and the addiction. I am very visable in town  extra large size  covered in tattoos  and  a back pack on my back  with  my o2
in it  and the ever present hose up the nose , at the pool exercising,  or on my harleys, and  if i see any one look my way  i tell
them  what caused my problems.
#27  Former smoker quit three years ago
#28  yes  every day!!!!  in some way shape or form !!!
#29  CEFUROXIME AXETIL  500 MG
#30  I dont really know?

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1. Rose Purdy, 1933, F
2. NY  mumsy310@juno.com
3. Emphysema
4.  63
5. 59
6. Efforts
7. No
8. Blood gas, Pulmonary Machine Breathing test, x-rays
9. Physician is a D.O.  Had the test done in a major hospital.
10. Yes
11. Atrovent,  2 puffs, twice a day
12. -----
13. Cardura, DiovanHCT, Premarin, Synthroid
14. ----
15. No.
16. No.
17. No.
18. No
19. No
20. No
21. No
22. Yes
23.  Medicare - HMO
24. No.
25. Yes, Anytime, Computer
26. It has been a roller coaster as far as how I feel.  I must lose weight but it is a problem.  Feel better when I lose weight. I know that very soon I will be on oxygen for walking.  Will be asking my physician about rehab. I think It would help.  Had personal family problems to deal with before I could consider it.  Now that Mom has passed away, I must consider exercising and getting my life in order.
27. Former - Quit 7 years ago when I got pneumonia and couldn't breathe.
That did it for me.
28. No.
29. Ampicilin
30. No.

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